Our 2015 CF Commercial that plays on MCTV

Thursday, April 28, 2011

In the Newspaper!!! / Cough Update / Ice Skating

Lil' Chris and his buddy, Brady. There first time ice skating:)

He looks like he is having fun and enjoying it, doesn't it?? Yeah....not the case. He wanted to get off the ice practically as soon as he got on;-) LOL! Not sure how I got such a good smile out of him for this pic:) LOL



Those who live close to us may want to check out The Daily Record newspaper soon;-) Lil' Chris and I got our picture taken tonight for the "President's Cookbook" section of us cooking Baked Ziti in our kitchen:) "Thanks Mary for the setup!" I'm not sure if they will use the pic of both of us or just me. There will be an article with a little bit of info about us and some recipes that I submitted.....I know, I know.....those of you who know me are thinking, "What????" Yes, I may not be the best cook, but I got some good recipes that I've had for a while;-) After all, my specialty IS Baked Ziti:) LOL


The recipes I submitted were........you thought I was going to tell you, didn't you;-) LOL!! I guess you'll just have to wait and buy the paper;) HaHa:)


They are also going to do a separate article and pic about our upcoming Great Strides Walk for May 14th at 9am by Ida Sue School:) YEA for Cystic Fibrosis Awareness!!!!


Don't forget...my next CF fundraiser is on Thurs May 5th at Wooster CiCi's Pizza from 5p-8p!!


If you haven't donated yet, there is only 2 weeks left!!!!! (I'll still accept donations after the walk;) Click here to donate today, any amount helps!!


Thank You So Much to all those who have donated so far!! We GREATLY APPRECIATE IT!!!


Have a GREAT weekend!
M
PS. Both kiddos have been coughing lately. They mainly wake up in the morning coughing;( Lil' Chris woke up in the middle of the night coughing for a little while. Please pray it goes away on it's own before his annual CF clinic appt on May 18th. Ayla's nose is still running, but I think she is just cutting teeth.

Saturday, April 23, 2011

CF Fundraiser Results!!!!

Jayde getting her face painted by Melissa :)







Our CiCi's Pizza CF fundraiser the other night went GREAT!!! We even did face painting this time:) Thank You Melissa for your great art work!! ;-)



In total, we raised about $750!!!!! Woo Hoo!!! So far, Kohl's has raised $1,500 for our Great Strides!! My goal is $5,000:) We CAN do it!!



BIG thank you to my fellow Kohl's associates for volunteering their time to come and help out so that we would get the $500 grant for Cystic Fibrosis. You girls ROCK...



Melissa M.


Beth Z.


Sharon H.
Sherri M.



One particular couple touched my heart, b/c while they were there eating, they put my event on their facebook page so that their friends and family would come and support CF too!! Isn't that AWESOME!! They have been to a couple of my fundraisers now:) Thank You guys!!!




Special thanks to some of my awesome neighbors who came to support Lil' Chris...


Carrie & Gideon


Ryan, Tiffany, Jayde & Rylee



My next CF fundraiser at CiCi's Pizza in Wooster will be on Thurs May 5th from 5-8p, so spread the word!!





Our Great Strides walk will be on Sat May 14th at 9am at the beautiful walking path by Ida Sue School!! It's going to be a lot of FUN!! So spread the word and bring the whole family:)


This weekend Nathan, Lincoln, Tyler, Uncle Greg, and Aunt Steph are in town, so the kids are having a BLAST playing with their cousins:) Thank the Lord all of our colds are gone and that Lil' Chris doesn't have a bad cough...although he did wake up coughing this morning, but hasn't much since. And thank the Lord that Nathan is doing well:)


I hope everyone has an AWESOME Easter!! We will be doing an Easter egg hunt today, then go see HOP the movie, and then dying Easter eggs:) YEA!!


HAPPY EASTER!!!

M

Monday, April 18, 2011

CF Fundraiser this Wed from 5-8p at Wooster's CiCi's Pizza!! / Cold Updates

Join us this Wed at Wooster's CiCi's Pizza between 5-8pm for "A Cure 4 Lil' Chris" and ALL who suffer from Cystic Fibrosis!!


A percentage of your receipt will go towards a CURE for Cystic Fibrosis and there will be a raffle for a FREE Applebee's dinner and a movie for 2:)

My next Wooster CiCi's Fundraisers for Cystic Fibrosis will be on May 5th from 5-8p, so save the date:)


As for an update on the kids colds.... they are doing much better and no major cough yet!!! PTL!!.....I, on the other hand, unfortunately caught their cold;-( It was inevitable. I should be all better by Wed for the fundraiser though, so that's good:)


See you Wed:)

M

Saturday, April 16, 2011

1st Colds in 7 months;(



Well, Lil' Chris ended up catching Ayla's cold too;-( I guess I can't complain too much since this is their first cold in 7 months:) But... you can guarantee that we won't be going on anymore vacations without our Vitamin D:) Vitamin D really does help build up their immune system along with the AWESOME air purifier that we have!!

Lil' Chris usually develops a cough after his colds, so please pray that he doesn't this time since Nathan will be visiting us next week for Easter. He has been coughing a little bit this morning though already;( Hopefully some extra Vest time will help. Chris and I haven't caught their colds yet, so please pray that we don't. Even though Nathan's counts are all good, I would still hate it if he were to catch anything from our household:(


The pics above are the 2 sweet rides from Grammy R! Thanks Grammy!! They LOVE them!! This should be a FUN Summer:)


Have a GREAT Weekend!!

M

PS. Don't forget to join us this Wed 4/20 from 5-8p at CiCi's Pizza in Wooster for my CF fundraiser:) Enjoy a Great meal for a GREAT cause!!

Wednesday, April 13, 2011

Vitamin D Experiment / Mini Vaca

Well, my test about Vitamin D was right!! None of us has had a cold since 9/6/10 and then we went on a mini vacation this past weekend and I didn't give them their Vitamin D....and Ayla ended up catching a cold;-( Please pray that it doesn't spread to all of us, especially Lil' Chris! Note to self....Don't leave home without your Vitamin D!!!! :) Maybe it was a coincidence, but maybe not:) I'm not going to take the chance next time, it's too risky for Lil' Chris. He was complaining of a sore throat off and on today, but no runny nose yet. To all my CF buddies and fellow CF parents out there (and everyone else;).....try taking some extra Viatamin D and see if it works for you! An adult should get about 5,000 iu daily, and for Lil' Chris and Ayla, I've been giving them about 1,500 iu daily which is good for their age. I know of one CFer who said she was going to try it, so how about you??? :) Let me know if it works for you too!! :)

We had such a nice lil' mini vacation:) It was just what we all needed!! It was so nice and relaxing. The 8 hour trip went very fast for me b/c my sister D got me hooked on reading Twilight. LOVED IT!! Now I want to take another long trip so I can read the next book in the series:) LOL!


YEA!!! We FINALLY got to meet Cameron!! My best friend, Christi, had her first baby 4 months ago and I finally got to meet him!! He is just the cutest lil' guy!! He's going to have the girls lined up around the corner with those baby blue eyes:-)


The pic above is of the cousins...Lincoln, Ayla, Nathan, Tyler, and Lil' Chris. Nathan looks great and his hair has even grown back in!! YEA!! He is doing very well, thank you all for your prayers for him and Lil' Chris:)


One more bit of good news....my new District Manager told me today that he is going to come to our walk for Cystic Fibrosis on May 14th here in Wooster!!!! YEA!!! Thanks Jason!! Good thing I got everything all set to go LOL:)...food, entertainment, prizes....I'm READY and can't wait!! :)


M


PS. Don't forget...next CF fundraiser is on Wed April 20th from 5-8p at Wooster's CiCi's Pizza!!

Tuesday, April 5, 2011

CiCi's Fundraiser / Thank You's:)

Last nights CF fundraiser at CiCi's Pizza was a hit!! LOL :) It's a long story, so I'll spare you the details...I will tell you that the downpour of rain did not help the situation any;-) LOL I'm just glad that my SIL's poster of Lil' Chris didn't get all wet and ruined.


Thank You to Josh from Welcome to Joshland for the AWESOME flyer he made for me to put out at my fundraisers!! THANKS JOSH!! I put them on yellow paper and they looked AWESOME!!


Special thanks to some friends that ventured out into the rain to come support Lil' Chris...


Vickie D and her husband

Sean and Michelle(thanks guys for your generous donation:)


BIG THANKS to my Kohl's girls...


Jill

Stacie M

Melissa M

and Donna H who saved me by coming at the last minute to be my 5th person to get the $500 grant! THANK YOU DONNA!!!


Woo Hoo 2 under our belt!! 8 more to go to hit our goal of $5000 raised just from Kohl's AIA events!! WE CAN DO IT!! It's for a GREAT cause:)


My upcoming events at Wooster's CiCi Pizza from 5p-8p are:

Wed April 20th (this was April 21st, but I changed it to the 20th)

Thurs May 5th

Thurs May 26th


And don't forget....our 2nd Annual Walk for a Cure for Cystic Fibrosis will be on May 14th at 9am at the Hewitt Cowels Pavilion by Ida Sue School in Wooster!!! ....Wow, I just sounded like my commercial! LOL!! Everyone at work keeps telling me that they have seen my commercial a bunch of times:) Some tell me it's creepy b/c they keep hearing my voice in their living room;-) LOL!! I went to Best Buy the other day to drop off some papers for volunteers for the walk, and the manager said "Yeah, I know what your talking about, I've seen the commercial for it!" :) LOL! Thanks again Clear Picture for playing our commercial so much! You guys ROCK!! (if you haven't seen it yet, it's posted on this blog under the header pic at the top:)


Click here to sign up today to walk, or if you can't make it you can always click here to donate:)


Another BIG THANK YOU to Amy K from work. She has raised $135 in sponsors already!! I asked her how she does it b/c she raised a lot last year too, and she said "It's no big deal, I just type up a letter and email it to my friends and family and then they donate!" Wow, You Go Girl!! THANK YOU, THANK YOU, THANK YOU!!!!!!!!


Thanks everyone!

M

PS. Coming soon....a BIG thank you to all my sponsers so far for my Great Strides Walk 2011:)

Monday, April 4, 2011

CF Fundraiser Tonight at CiCi's Pizza 5p-8p!!!

Last years "A Cure 4 Lil' Chris" team...Thank You Everyone who attended and showed your support for Lil' Chris!!!
Join us tonight at Wooster's CiCi's Pizza between 5-8pm for "A Cure 4 Lil' Chris" and ALL who suffer from Cystic Fibrosis!!


A percentage of your receipt will go towards a CURE for Cystic Fibrosis and there will be a raffle for a FREE Applebee's dinner and a movie for 2:)

Save the following dates for my upcoming Wooster CiCi's Fundraisers for Cystic Fibrosis:


April 21st 5-8p

May 5th 5-8p

May 26th 5-8p


As always, you will see 5 Kohl's associates volunteering their time to help find "A Cure 4 Lil' Chris" and help us get a grant of $500 each event for the Cystic Fibrosis Foundation:)


Special thank you to tonight's Kohl's volunteers:


Me:)

Stacie M

Melissa M

Jill

Kaitlyn G


Special thanks to Barb and Helen to offer to come if one of the girls can't make it:) You guys ROCK!!! Thank You So Much Girls!! It means the world to not only us, but ALL CFers!!!


If you can't make our fundraiser tonight but would like to donate, click here to make an online donation for

"A CURE 4 Lil' Chris!"


See you tonight at 5pm:)

M

Saturday, April 2, 2011

Test Results / Cure to the Common Cold???


Here are the results from Lil' Chris' chest x-ray, blood work, and throat culture from last month and what the dr said about them...


-Chest x-ray came back normal. YEA!!! :)

- vitamin D level is normal- "this is great and hard to do in the winter" the dr. said :) I guess the Coromega Omega3+Vitamin D and the gummy Vitamin D's I have been giving him this winter really helped!! We are going to continue to give the kids these year round since the whole house went ALL WINTER WITH NO COLDS!!! Can you believe it??? This was a first!! My husband and I had a sore throat at one point, and I remember feeling sick one day, but completely fine the next, so I guess it was just allergies, but THAT WAS IT!! Have we found the CURE to the COMMON COLD??? My Dad was the one who told me about Vitamin D and I guess he was right!! Maybe it IS the cure to the common cold!!! "THANKS SO MUCH DAD!!! It's soooo important to keep Lil' Chris as healthy as possible and your knowledge on Vitamins has helped him soooo much over the last 3 1/2 years of his life!! Between all the Vitamins you gave me to take when I was pregnant with him, and all the Vitamins you suggest he take like the Omega 3 and Vitamin D and Vitamin C's, AND with the AWESOME air purifier you gave us, and your knowledge on how important exercise is to the lungs, and not to mention your awesome donations to the CFF....I honestly believe you have single handily helped save and extended my son's life!!! I will never be able to repay you!! All this combined is the greatest gift you could ever give me....a "healthy" Cystic Fibrosis son!! I LOVE YOU, DADDY!! YOU ARE THE BEST DAD IN THE WHOLE WIDE WORLD!!!!!"


- allergy testing: "Looking at his results, the only thing that probably causes a problem, or is high enough to consider abnormal, is cats or cat dander. I would still avoid broccoli (that lab is a special send-out) since after you have a reaction, the next reaction can be more severe."

- GGT- "this is a test of liver health, as are some other tests that were sent (AST, ALT). His GGT is mildly elevated(his GGT=50 and standard range is between 3 - 22), and something we will likely keep an eye on over time, but nothing to act upon right now." ;-( I'll definitely be asking about this at our annual visit!

-Throat culture- sensitive staph aureus like the last few times. YEA!! No big bad bacteria!!! Thank you Lord, b/c Nathan, my nephew, is coming in a couple of weeks and if Lil' Chris had a bad bacteria, then they wouldn't be able to be around each other since Nathan has Leukemia.

We will go over everything in detail at his annual visit next month, so I'll let you know more then. As for an update on Lil' Chris...he continues to do GREAT!!! He amazes me everyday when I look at him and think about how much worse it could be right now. I'm praying, praying, praying that a CURE will be found before he gets worse!! The donations have been rolling in, so that gives me HOPE:) Thank you to all who have donated so far!! It literally means the world to our family!! If you haven't donated yet, but would like to, click here to make a difference today!!


Thank you for all your prayers and keep them coming!! :)

M