Our 2015 CF Commercial that plays on MCTV

Sunday, December 25, 2011

Our Christmas Pics / Video of Santa :) Merry Christmas!!!

We got our Christmas pics done the other day and here they are....(Thanks Dee, Kevin, & Lil' Kevin for Ayla's cute dress:)

My Ayla Bella:)....
These kids are just tooooooo cute!! I can't help but spend a fortune on pics!! LOL...

Our annual family pics:)...

My BIG boy...
Here is a video of the kids in the final days before Christmas and meeting OUR Santa:) It's long, but just too cute not to post;-) I love it when they sing Happy Birthday to Jesus:)

I hope you enjoyed them!! MERRY CHRISTMAS!!!!!!!
M
(now it's time to see the wonderful surprised looks on my kiddos faces when they see all their awesome gifts!!.....that's MY favorite gift;)

Thursday, December 22, 2011

CF Update / 1st Christmas Musical

I can't believe it's been since Dec 5th that I last blogged!! Sorry about that:)

The kids and I are all doing great! Our colds are all gone and Lil' Chris' cough is much better. He just seems to cough the most in the morning, but it's not as junky sounding. Once I make him blow his nose, it's not as bad. The other day before school though, he was coughing so much that he threw up 2 times! It wasn't a bad cough though, more dry than wet. Once he blew his nose, he was fine. I HATE THICK, STICKY MUCUS!!! I'm sure Lil' Chris hates it more than me;) lol

We are all ready for Christmas and can't wait!! The kids are VERY excited! I told the kids(mainly for Lil' Chris' sake) that if they finished all 3 meals of the day, then they would get an early Christmas present...so far, they have only gotten one and I started this 10 days before Christmas;) LOL

I sent about 40 Christmas cards out and I wish I could send one to all of you, so here is YOUR card;-)...Merry Christmas!!



On Dec 13th, Lil' Chris had his 1st Christmas musical!! YEA!! He did such a GREAT JOB!! I of course sat on the wrong side of the room, but I tried to get pics and video as best I could with Ayla not sitting still on my lap;) LOL Check out the video below, he is the one all the way to the right in the red shirt. After they sang, they got a special visitor who Lil' Chris just had to go see like every 2 minutes!! LOL I can't believe Ayla actually sat on Santa's lap too!! She even told him what she wanted for Christmas! She wants a pink scooter and he wants a blue jeep, but since then it has changed to a spiderman bike. LOL I think he'll be happy with what Santa got him;-) LOL


I hope you all have a VERY MERRY CHRISTMAS AND A HAPPY, HEALTHY NEW YEAR!!!
M

Monday, December 5, 2011

CF Links / Colds / Coughs / Christmas decor :)

Sorry it's been a while since I've posted. You know that cold that the kids had....well, I ended up getting it too unfortunately. It lasted over 2 weeks!!! It was almost all gone after the first few days, but then we went to Kalahari (thank you Oma and Opa for the early Christmas present!!) and walking around outside with a wet head probably wasn't a good idea. Then the next night I had to stand outside in the freezing cold for 2 hours at work for the Black Friday sale working the loooooong line, which I'm sure didn't help my cold go away any. BUUUUUT...it was all worth it, b/c Kalahari was AWESOME and Black Friday was a HUGE success!! I helped lead our store to be #1 in the district and #2 in the REGION!! WOW!!! I even opened 40 credit apps myself!! I was #1 for the day!! It was GREAT!!!

The kids are still getting over their colds too. We are all in the cough stage, esp Lil' Chris. He had the most mucus/snot I've ever seen!! He even threw up, b/c he was coughing up so much! He would blow his nose and it would just keep coming and coming and coming!! Poor kid. He's been coughing a lot the last couple of days, so a call to the CF clinic may be in order soon if it doesn't go away. Extra Vest and Acapella times are a MUST right now!

I bought some kids vapor rub(sorry I couldn't get the pic to work right side up for some reason;) and put it on their chests last night and at first Lil' Chris couldn't STOP coughing! I thought "Oh GREAT! What did I do??" But then it settled down and he slept all night without getting up to cough, PRAISE GOD!!! Ayla too!!! I wasn't sure if CFers could use a vapor rub, so I asked on CysticLife and got some responses that said it was ok b/c it opens up the airways to breathe easier so they can get some sleep. Sleep if very important for CFers, b/c they use so much energy(and calories) when they are coughing all the time. I'm just glad it worked and I'll ask our dr about it too. Thank you to those on CysticLife for answering my question so quickly:)


On a good note...I got all my Christmas shopping almost all done and 95% is already wrapped and ready to go under the tree Christmas morning:) The kids helped me decorate the Christmas tree yesterday, which was a lot of fun:) How do you like our new stocking holder(see pic above;) Daddy finished putting up all the lights outside too! The kids LOVE driving around our development all the time to see everyone's lights:) Thanks neighbors for all your awesome lights!!! :) They look GREAT!!

Below are some links that I have been wanting to post, but forgot about;) It's some good info tho, so check them out!!

Thank you everyone for all your prayers!! Keep them coming that we have a "healthier" Winter and that Lil' Chris' cough goes away soon all on it's own;-)
M

http://www.timesreporter.com/news/x669417231/Phila-native-making-a-difference-for-cystic-fibrosis-patients

http://www.cbsnews.com/8301-504763_162-20129258-10391704/new-cystic-fibrosis-drug-shown-promising/

http://www.cff.org/aboutCFFoundation/NewsEvents/2011NewsArchive/11-2-NEJM-Features-Kalydeco-Study.cfm

http://www.nytimes.com/2011/11/04/nyregion/with-cystic-fibrosis-kevin-dwyer-running-new-york-marathon.html?_r=2&ref=nyregion