Our 2015 CF Commercial that plays on MCTV

Sunday, June 30, 2013

Disney 2012 Vaca Photo Book

Check out this Photo Book we made by Shutterfly of our 2012 Disney Vacation...(better late than never, right??) LOL

Click here to view this photo book larger

Shutterfly photo books are the new way to preserve your memories. Create your own today.

Saturday, June 29, 2013

Summer Vaca Fun / Cough:(

I was on vacation this past week while my husband had to work, and the kids and I had a GREAT time together!! We did many outside things in between rainstorms all week. We went to 2 different spray parks, pool, and even had fun with their old blowup pool with slide!! I guess we had too much fun, b/c by Thursday, Ayla's nose started running non-stop. At first we thought it was allergies, but when it kept running ALL day, we thought maybe it was a cold. Lil' Chris started with a stuffy nose too. Then he woke up Friday morning with a bad productive cough:( I've been hearing a lot of people having allergy issues with all these storms and hot weather, so I still don't know if it's their allergies or a cold. 

Lil' Chris' cough may be from post nasal drip, b/c his nose is stuffy. So, my last day of vaca(fri) was spent doing treatments and giving meds. We want to get rid of his cough ASAP before it gets deep down in his lungs. We've been doing more treatments to help him get it up and spit it out so that it doesn't get down in his lungs and start growing bad bacterias which could lead his health down a very wrong path.When I called the CF nurse to ask if we should increase the Pulmozyme to 2 times a day, she said no, to just increase everything else and maybe try Mucinex which works like Pulmozyme to help thin the mucus to help get it out. He has been doing a GREAT job with the extra treatments, and has spit out mucus a few times now!! Ayla has been doing her Albuterol puffer too along with Lil' Chris and has been taking a cough suppressant, b/c she started with a lil' cough. They like doing the treatments together:)

Here is what we have been doing...
After breakfast...Flonase, Mucinex, Albuterol puffer, Vest-30min, Acapella
After lunch...Albuterol puffer, Vest-30min, Acapella
Before bed...Flonase, Mucinex, Albuterol puffer, inhaled Pulmozyme, Vest-30min, Acapella
video
I will keep you posted on how they are doing. Please pray that his cough goes away quick and he doesn't get any bad bacteria's in his lungs. We know that every time we go somewhere...there is always a risk of him getting sick. You never know if there is another CFer there, or if another kid is sick, etc.... We try not to keep him in a bubble though.
video

Above is just 2 of the many video's I took this vacation:) I wish I could post the pics, but blogger isn't letting me right now:( I did post some on facebook though.

Praising God that 10 year old Sarah with CF is doing well with her new lungs. She had to get another set of lungs 3 days after the first set, but is doing better and got all her chest tubes out!! Please keep her and the 2 donor families in your prayers.
M

Friday, June 14, 2013

Community Garage Sale/CF Bake Sale Sat 6/15 8a-3p

Our Annual Community Garage Sale is Sat June 15th from 8a-3p!!!! If you want the address, please email me at lilcmom@gmail.com. 100% of everything we sell at our house is going towards a CURE for Cystic Fibrosis and our neighborhood is doing a Bake Sale/Goodies for CF!!! Some houses will have baked goodies, others will have hot dogs or chips or drinks, etc... We are trying something a little different this year instead of everyone just doing baked goods:)

Last year we all raised $400!!! I wonder if we can reach $500 this year???

The other day, we got a visitor from a lady that lives up the road in an elderly home. She is in a wheelchair and remembers us from our Garage Sale last year, and remembered about us raising money for Cystic Fibrosis for our son. She said that she is having her own sale and that she wants 100% to go towards a CURE for CF!! Isn't that the nicest thing ever!!! Her name is Barb and will be visiting us at our garage sale too. I can't wait to thank her for her generosity and for thinking of us:)

This is why we do the community bake sale for CF...not JUST to raise money, but to spread the word about Cystic Fibrosis!! One in 31 Americans is a symptomless carrier of CF, just like my husband and I. Two carriers together have a one in four chance that each child will have Cystic Fibrosis. Lil' Chris was our 1 in 4 chance. Luckily Ayla was not born with CF.

So, spread the word about CF neighbors!! The best website is cff.org!!

BIG THANK YOU TO ALL OUR NEIGHBORS AND BARB WHO ARE HELPING US GET ONE STEP CLOSER TO "A CURE 4 LIL' CHRIS!!"
M
PS. Lil' Chris is doing great and can't wait for his cousins to come from NJ tomorrow for the whole week:) Also, we are so happy that Sarah, 10 year old CF girl, was able to get her new lungs!! It's been all over the news and I am so proud of her mom for doing everything she could to save her daughter by petitioning for her to get lungs even though she is under the age limit.

Monday, June 3, 2013

Fun Weekend Project!!

Here it is....
 Lil' Chris and Ayla helping:)
 This is just steps 2-12 out of 35 steps of wood with their bags of screws and nails(lots of prep work)
 My sheet to organize each step;) LOL
 Our AWESOME neighbor, Sean, was a HUGE HELP!! THANK YOU SEAN!!
 Lil' Chris helping:)
 Lil' Chris helping get the roof started:)
 Ayla is on the 2nd floor, and the Chris' are on the 3rd floor;) lol
 One roof is up!! It's so cool that Chris and I can stand up straight on the 2nd floor:)
 Chillin while Daddy and Sean put on the 2nd roof:)
 About to put on the swing part!!! YEA!!
 Playing while Daddy puts the picnic table together:)
 Ayla swinging while Lil' Chris was at his last day of JKindergarten. She was happy to have it all to herself:)
 They go pretty high! Their heads go above the 3rd floor!! This is their favorite part...the yellow swing;) LOL
 Having their 1st picnic at their new picnic table:) It's kinda nice in the shade behind the rock wall and slide!
 Spying on me with their telescope, and Ayla driving the ship with the wheel!!
They couldn't be happier:) The smiles on their faces every time they play on it, makes it all worth it:)