tag:blogger.com,1999:blog-4754054029583934406.post4642736241238479364..comments2023-10-12T03:28:17.821-04:00Comments on A Cure 4 Lil' Chris: CF UpdateAunt D.http://www.blogger.com/profile/05882586467462507480noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4754054029583934406.post-44859593910323155122008-04-03T11:18:00.000-04:002008-04-03T11:18:00.000-04:00Hey Susanna! Actually, I'm glad to hear that I'm ...Hey Susanna! Actually, I'm glad to hear that I'm not the only Mom that has trouble keeping up with 5 people too!! The laundry feels endless, doesn't it? =P<BR/><BR/>Thanks for your always encouraging advice for M! I'm so glad she has someone she can relate to & ask advice from. <BR/><BR/>D.Aunt D.https://www.blogger.com/profile/05882586467462507480noreply@blogger.comtag:blogger.com,1999:blog-4754054029583934406.post-42992351712374827732008-04-03T10:45:00.000-04:002008-04-03T10:45:00.000-04:00You know what? I was thinking the same thing Susan...You know what? I was thinking the same thing Susanna! It's very encouraging. But I guess we won't know until the time comes.<BR/>Thanks for the advice about the purple stains. I'd hate to ruin any clothes my sisters gave me ;)<BR/>Luckily, they both had boys within the last 3 years. Gotta love hand me downs ;)<BR/>MLil' Chris' Momhttps://www.blogger.com/profile/04604074020620433262noreply@blogger.comtag:blogger.com,1999:blog-4754054029583934406.post-81919335382469906802008-04-03T10:06:00.000-04:002008-04-03T10:06:00.000-04:00Glad it's going better:-) If you give just little...Glad it's going better:-) If you give just little bits at a time you can watch the little beads settle down in the point of the syringe. Eventually you'll get to where there aren't any beads left in the syringe to clean out:-) Also as Lil Chris gets used to taking it (in small amounts at a time) he'll keep it in his mouth instead of letting it run back out. One more thing, if a lot of the little beads get on his clothes, you'll want to make sure you wash it soon. I made the mistake of letting some outfits sit for several days in the laundry basket...:-( those little beads turn into little purple spots that stain. I know, I know most moms keep up with the laundry every single day so it would be no problem (Just kidding:-) At least I hope I'm not the only mom that has trouble keeping up with 5 people sometimes:-)<BR/><BR/> It's so good to hear about Tricia's tx. I also connected to "Living Life Breathlessly" and read about her tx. At first it made me feel badly because these girls are our age and younger. But then I read on "Breathing Deeply" (and she's our age too) that her life expectancy was only 10! That goes so show the extreme advancement in treatment in the last 20 years. If these girls (ladies) are 15-17 years past their life expectancy and are just now having tx's ... will our children be into their 40's and 50's before they need transplants?? I know that each person responds differently to the disease, but it's an encouraging idea to think of it that way:-)<BR/><BR/> Have a good day, Susanna<BR/>PS I'll come back and write about the CD sometime. I haven't forgotten.Anonymousnoreply@blogger.com