"Dare to Dream" song by Dr. Francis S. Collins

Check out this video where the director of the National Institutes of Health, Francis S. Collins, M.D., Ph.D. performs his song "Dare to Dream" at the CF Foundation's North American Cystic Fibrosis Conference (NACFC) in Minneapolis, MN on 10/15/2009.

More than 3,000 leading scientists and health care workers from around the world have gathered to talk about the latest treatment and research into the chronic lung disease.

A pioneer in Cystic Fibrosis research, Dr. Francis Collins, opened the conference. Collins was part of the team that 20 years ago, discovered the gene that causes CF.

Today, he is better known as the director of the National Institutes of Health - the biomedical research arm of the federal government.

President Obama called him "one of the top scientists in the world," when he nominated Collins to the post in June.

Dr. Collins talked with All Things Considered about cystic fibrosis and some of his other priorities in his new post at NIH.

Isn't is great to see or hear that these doctors "GET IT!"

M

"Angels in Waiting" / Be a CF Advocate

"Angels in Waiting" by Tammy Cochran

This is my new favorite song;) Thank you Phoenix's mom for posting this and for getting Tammy to come to one of your fundraisers for Cystic Fibrosis. I wish we could get her to come to our walk. Maybe someday;-)

I hope that when you watch this video that you really pay attention to the words. They mean SO much to all us CF families. I pray everyday that a cure will be found and that Lil' Chris will live a LONG, FULL, PAIN FREE life!

Tammy's brother Alan lived to 24, and her other brother Shawn lived to only 15. PLEASE, PLEASE, PLEASE DON'T LET THIS HAPPEN TO LIL' CHRIS!!! DONATE TODAY AND HELP SAVE HIS LIFE ALONG WITH 70,000 OTHER CF LIVES!! Click here to donate in honor of Lil' Chris.

You can help in another way too...be a CF advocate!

Cystic Fibrosis Caucus Co-Chairs Representative Edward Markey (D-MA) and Cliff Stearns (R-FL) will soon introduce a bill to help more people with CF participate in clinical trials. Right now, because of eligibility rules regarding compensation for clinical trial participation, many people with CF are forced to choose between taking part in important clinical trials and keeping their health care coverage. Isn't this CRAZY!?!

With nearly 50% of the cystic fibrosis population receiving benefits, this significantly reduces the number of patients able to help test the 30 promising new therapies. The bill to be offered by Congressmen Markey and Stearns will help potential new therapies for cystic fibrosis and other diseases to move swiftly from the research stage into the hands of patients who need them.
Many researches believe that a cure for CF is literally just a year or two away from us now! The ONLY way to find that cure is to have more people with CF participate in clinical trials. We need to help make this easier for them!!

Please click here and become a CF advocate! Once you arrive at the web page, you'll find that the email has already been written for you...you simply need to fill out a bit of personal info so that the email goes to your member of Congress. You can also add a personal story about CF, please feel free to mention Lil' Chris(or any other CFer you know) and the impact that his story has had on your life.

Thank you SOOOOOO much for taking 2 min. out of your day to do this for not only Lil' Chris, but ALL CFers;-)

Please leave me a comment if you participate and let the world know that you are helping make CF stand for Cure Found!!!

Thanks,
M