Vitamin D Experiment / Mini Vaca

Well, my test about Vitamin D was right!! None of us has had a cold since 9/6/10 and then we went on a mini vacation this past weekend and I didn't give them their Vitamin D....and Ayla ended up catching a cold;-( Please pray that it doesn't spread to all of us, especially Lil' Chris! Note to self....Don't leave home without your Vitamin D!!!! :) Maybe it was a coincidence, but maybe not:) I'm not going to take the chance next time, it's too risky for Lil' Chris. He was complaining of a sore throat off and on today, but no runny nose yet. To all my CF buddies and fellow CF parents out there (and everyone else;).....try taking some extra Viatamin D and see if it works for you! An adult should get about 5,000 iu daily, and for Lil' Chris and Ayla, I've been giving them about 1,500 iu daily which is good for their age. I know of one CFer who said she was going to try it, so how about you??? :) Let me know if it works for you too!! :)

We had such a nice lil' mini vacation:) It was just what we all needed!! It was so nice and relaxing. The 8 hour trip went very fast for me b/c my sister D got me hooked on reading Twilight. LOVED IT!! Now I want to take another long trip so I can read the next book in the series:) LOL!

YEA!!! We FINALLY got to meet Cameron!! My best friend, Christi, had her first baby 4 months ago and I finally got to meet him!! He is just the cutest lil' guy!! He's going to have the girls lined up around the corner with those baby blue eyes:-)

The pic above is of the cousins...Lincoln, Ayla, Nathan, Tyler, and Lil' Chris. Nathan looks great and his hair has even grown back in!! YEA!! He is doing very well, thank you all for your prayers for him and Lil' Chris:)

One more bit of good news....my new District Manager told me today that he is going to come to our walk for Cystic Fibrosis on May 14th here in Wooster!!!! YEA!!! Thanks Jason!! Good thing I got everything all set to go LOL:)...food, entertainment, prizes....I'm READY and can't wait!! :)

M

PS. Don't forget...next CF fundraiser is on Wed April 20th from 5-8p at Wooster's CiCi's Pizza!!

3 1/2 year CF Clinic Visit 12/15/10

So sorry it has taken me this long to update you on Lil' Chris' last CF clinic appointment 5 days ago. I have been so exhausted lately!! It's tough working retail full-time, taking care of the house chores, and being a full time mom (especially to a CF kiddo) this time of the year. I'm trying my best though.

His 3 month check up went well. His weight was 36.2 compared to 34.5 3 months ago. His height was 40 inches compared to 39 1/4 inches 3 months ago. His BMI was 55% which is good(not sure what it was last time). The clinic updated to be all electronic now, but the printout that we get at the end of the visit STILL doesn't show all the measurements and percentiles like I wish it would!! I still have to ASK what they are and then try to remember them. I may have to talk to someone about that;-) lol

His CF doctor said his lungs are clear and he is doing GREAT!! She said not to change a thing! Question....is it weird that she didn't ask one thing about his Vest?? Like...is he doing it??? LOL!! Maybe she just forgot;-) At least WE know that he is getting his Vest every morning and night for 30 minutes each:) LOL

She put in his (electronic;) file that we are giving him 500mg of Vitamin C and Coromega Omega 3 + Vitamin D every day. She didn't seem to object that we are giving him these, and they seem to be keeping colds away, so we are going to continue to give it to the kids, esp Lil' Chris. CysticLife posted this on Facebook and I thought it was interesting since the extra Vitamin D seems to be working so well for Lil' Chris...http://www.foodconsumer.org/newsite/Non-food/Drug/denufosol_helps_cystic_fibrosis_1912100916.html

2 cool things happened at clinic this time....1. Ayla wanted to wear a mask(you know...she DOES have to do EVERYTHING her brother does;) so I put one on her and she left it on!! I couldn't believe it!! She's becoming such a big girl! 2. The cool nurse let Ayla have a hospital bracelet too!! She was sooooo excited!! Sometimes she wants to be so much like her brother that she even asks to take pills before she eats and will once in awhile ask to do the Vest too:) lol! Poor kid doesn't realize how good she has it yet.

Make an on-line slide show at www.OneTrueMedia.com

Lil' Chris got a throat culture, so please pray that it comes back normal. I'll let you know when I find out. I was telling the nurse that Nathan(my nephew with Leukemia) was planning on coming to visit us soon, but his counts are down right now...she said that it would definitely not be a good idea for Lil' Chris to be around him when his counts are down, especially with what Lil' Chris has cultured in the past. It's just too dangerous for Nathan. So please also pray that Nathan's counts go back up so that we can get together in the next couple of months.

I think that's it for now, I've got to go to bed and get up early for work tomorrow again...housework didn't get done AGAIN, but oh well, I really wanted to update you all on how his visit went:)

Thanks for all your prayers,

M

PS. Next update......Christmas pics!!! YEA!!!! MERRY CHRISTMAS!!