Our old CF Commercial that plays on MCTV. Still working on this years.

Friday, September 18, 2009

Cold and Fever #2/Potty Training Update

Lil' Chris' cold is all gone! YEA!! All of our colds are gone! YEA YEA!! We have all been well for a few days now, but I haven't had a chance to post:)

This past weekend we had a BLAST at the Kalahari Resorts for my husbands birthday and as soon as we got home, Lil' Chris wasn't himself. He woke up in the middle of the night with a fever of 101.8. He had a fever all day on Tues and then Wed morning, but after his nap he was all better and back to his normal self! Thank God!

We think the fever was from the Augmentin(antibiotic for his cough). He got a fever the last time he was on it too. It seems to happen after the first couple of days of taking it. The clinic wanted us to still give it to him. We stopped it for a day, b/c he wasn't eating anything and we didn't want him to take it on an empty stomach. Now he is back to taking it and hopefully it kicks his cough out for good!

Lil' Chris is doing great with his potty training! He asks to go pee and poo on the potty! He even asked to go potty when we were at the water park this weekend! I couldn't believe it!! There he was out in the water with his swim diaper on having fun and then all of a sudden he comes running back to say he has to go pee pee on the potty! He asked a few times while we were at the water park and he was going on the big potty in our hotel room too! I couldn't be any prouder! Now if only we could get night time potty training going;-) That's more our fault for not wanting to get up in the middle of the night;-( We're so bad, but we both work full time and it's hard to get up in the middle of the night. I know, I know...we just have to do it one of these days. Maybe once he gets nap time potty trained 100% then we'll try night time;-)

Here is the video of him playing at the water park and then running up and saying "Pee Pee on the Potty?"

More pics to come:)

M

PS. If you are a CFer of a CF caretaker, check out the poll on the right side of my blog at the top.

Friday, September 11, 2009

300 Hours on the Vest/Cough Update/Chris' 30th Birthday

I can't believe my lil' guy has done 300 hours, yes that's HOURS, on his Vest and he is only 2!!! Poor guy...and he almost never complains about doing it too! I give him a lot of credit! I couldn't be prouder of him:) He hit 300 hours on 8/29 and the last time I posted when he hit 200 hours was on April 8th, so in under 5 months he did another 100 hours...it's hard to believe! We just do like it's nothing. It's just part of our morning and night routine. Here are some pics I put together over the last 6 or 7 months...


His cold is almost all gone I think. Yesterday it didn't seem like his nose ran at all, but today it was running a little bit. Over the past few weeks, I've noticed a little cough coming on. Since he got this cold, it has seem to hit him harder. Therefore, today I called our CF clinic and they prescribed an antibiotic over the phone. He will begin Augmentin again starting tomorrow and will take it for 21 days. Hopefully it kicks it out pretty quick and it doesn't come back again for a loooooooooooong time:)

A day after Lil' Chris got his cold, I got a cold, then Ayla got a cold the next day, and now my hubby has it;-( I don't know how she got it too! I was wearing my mask and sanitizing like crazy!! Note to self: Next time wear your mask BEFORE you get sick, so you don't get sick and spread anymore germs to the rest of the family!!

Yesterday was my husbands 30th birthday!!! This makes me sad, b/c that means I'm right behind him;-( We had a fun day off together and took the kids to Ramseyer's farm again just like last year(I think we are going to make this a tradition;-) I will post the pics soon. I'll also post the pics of his BIG birthday present!! I thought 30 was a big deal, so I wanted to do something special for him...a 2 day stay at Kalahari Resorts...it's America's largest indoor water park!! We can't wait to go, he was soooooo excited and surprised!! It was soooo hard for me to keep it a secret for so long! We usually tell each other EVERYTHING!! I feel so relieved now to finally talk about it with him and how I went and talked to his new boss to get him those 2 days off and everything!! He had NO CLUE!! So much fun:) Pics coming soon! Oh yeah, and I got him a Dairy Queen ice cream cake too...his fav;-)

HAPPY 30th BIRTHDAY DADDY;-)

WE LOVE YOU!!

M

Tuesday, September 8, 2009

Lil' Chris has a cold ;-(

Poor Lil' Chris has a cold;-( At least it waited until my in-laws left. Only a few hours after they left yesterday, his lil' nose started running and hasn't stopped yet;-( He also has been coughing a little bit more. He doesn't let anything stop him though...he just keeps on playing with his toys like there is nothing wrong! Gotta love him:) Please pray that this cold doesn't turn into something worse as we all know it can.

Hey! When did he get tall enough to turn the lights on and off?!? And when did Ayla get so smart that she can imitate shaking her head "no" and "yes"?!? These kids are too much;-) They put a smile on my face everyday!!! :) Wait...let me rephrase that... They put a smile on my face NUMEROUS times everyday!!! :) :) :)

We had a great visit with my in-laws. We went to Cedar Point...the BEST amusement park EVER!! Pics to come:)
M
PS. I didn't forget about the Vest pics...they are coming soon!

Monday, August 31, 2009

Ayla's Firsts;-) Too Cute!!

Yesterday was a BIG day for Ayla!! She starting sitting up all by herself!! Then I noticed her tooth finally broke through!! Then today she starting holding her own bottle!! When did she turn into such a young lady?!?


M
PS. Special Vest pics and video to come and more vaca pics;-)

Saturday, August 29, 2009

Day 1 of our Summer '09 Vaca Pics

Here are our Summer vacation pics finally! Well, actually this is only day 1. I told you I took a TON of pics!!! ;-)

On this day, we hopped back and forth between the water park, my sister-in-laws house, and my in-laws pop-up camper. Don't worry...we kept Lil' Chris far away from any camp fires;-)

M
PS. Coming Soon....Day 2 of vaca pics and some special vest pics;-)

Wednesday, August 26, 2009

R.I.P. Richard. You will truly be missed ;(



Richard, the oldest male CFer I knew, went to be with the Lord very early this morning leaving behind his beautiful wife, Kori, and their 2 sons. He not only had CF, but he also had Colon Cancer. I admired him for all his strength for all that he had to deal with throughout his whole life. I met him through this blog probably about a year or so ago. He was a true inspiration to me. He showed me that Lil' Chris CAN and WILL live past the CF average life expectancy of 37, just like him!

Although I am glad that he can finally breathe easy with no pain...I am sad that he is gone. He will truly be missed not only by me, but by many friends, family, and also his CF family(us fellow CF bloggers).

Rest in peace, Richard. We love you and miss you!
M
PS. Please pray for Kori and their 2 boys to get through this rough time.

Tuesday, August 25, 2009

Pediatrician Visit

Today Lil' Chris and Ayla had their well visits at the pediatricians. It went great! She said they are both doing great and that Lil' Chris is doing really well for having CF!


His measurements have always been a little different at the pediatricians than at the CF clinic. Here they said that his weight was almost 28 lbs, where the clinic said 30 lbs. They said his height is 37 inches where the clinic said 35, so who's right??? IDK!

She wants to see Lil' Chris eating more macaroni type foods instead of baby food. So would I, but he refuses to eat any mac n cheese or any type of macaroni unfortunately. So she suggested he see a speech therapist to help him to eat more of this type of food. I told her that we can get a free nutritionist through BCMH(his secondary insurance), so that is what we are going to do. I'll let you know how it goes.

While we were in the room and she was putting all his info in her computer, I told Lil' Chris "Don't touch" and she laughed and said "That's funny telling a 2 year old not to touch!" I said "He actually listens pretty good! He'll stop touching or doing whatever when we tell him to usually." I don't think she really believed me, but he is really a good kid. We are VERY blessed to have such a GREAT kid!!

She was very proud of Lil' Chris for learning to ask to go on the potty so quickly! She thinks he is ready for a toddler bed :0 He may be ready, but I'm not so sure mommy and daddy are ready for that yet ;-0 We'll see.

He has been doing so great with potty training! Today he had one accident, but it was basically all my fault though. I was giving Ayla a bottle and he was trying to tell me he had to go, but I thought he was just trying to get my attention since I had just tried him on the potty right before I started feeding her. Sorry kiddo...mommy's fault ;(

Ayla weighs 17 lbs and 10 oz. and she is over 26 inches long!! She is getting sooooo big soooooo fast ;( I can't believe she is 7 months old already!! She has 2 teeth on the bottom coming in already! You can't feel them, but you can see them...they are so cute;-) She can now start to eat baby veggies and start drinking water or juice in a sippy cup. I can't believe she is ready for all this already! Time flies!

Ayla had to get 3 shots unfortunately :( Then she got to drink that special juice. It must have tasted weird, b/c she kept sticking her tongue out afterwards. It was cute. Lil' Chris just had to get his finger pricked for a lead test. He was NOT happy about it! He got a band aide on it afterwards and you would think he broke his finger or something! He wouldn't use that hand for the longest time! He just kept holding that hand up in the air. It was so funny seeing him try to play at the park with only one hand :-) LOL

Sorry there are no pics. They were really quick today thankfully! AND Lil' Chris got to wait in the waiting room since it was empty, so that was nice;-)
M
PS. Pics coming soon:)

Monday, August 24, 2009

3 Days With NO Potty Accidents!!!!

Lil' Chris has now gone 3 WHOLE DAYS WITHOUT ANY POTTY ACCIDENTS!!! YEA!!! I can't believe how once it clicks, it sticks;-) LOL!!

It's soooooo nice only using ONE pair of undies a day compared to the 10 or more the first few days;-)

Guess what?? He even went potty on the big boy potty today(the real toilet that is;-) I was soooo proud of him!!! AND he even went #2 on the big boy potty tonight!! YEA!!! Mommy was very happy b/c there was no clean up;-) LOL

You're never gonna guess what else he did today.....he took a nap with his undies on for the first time and he didn't even have any accidents!!!!! I was shocked!! What a BIG boy he is becoming:)

Today was his first day with the babysitter after being potty trained. He did GREAT!! He didn't go for her, but he didn't have any accidents either. I think he was waiting for us to get home. Luckily I was home by 12:45;-) Like I said before, sometimes he doesn't even go until after nap time anyways.

We also went outside today and he didn't have any accidents! We were out there for awhile too! He was helping me pull weeds. He was such a big helper too!! When did he grow up so quick?

Things we still need to work on....
1. Continue potty training at nap time
2. Start potty training at night time
3. Start potty training for when we go out to places.....I DREAD this one! Public restrooms are SOOOO GROSS!!! All I can think about is all the germs :( But I need to get past it and just do it, otherwise he will be 30 years old and still wearing diapers when we go out....that would be funny;-) LOL

Tomorrow both the kids have dr.'s appointments with the pediatrician. I think they both get shots unfortunately:( I'll let you know how it goes.
M