CF Clinic Visit / Thirty-One & Alice Noble Fundraiser Results

Had a GREAT CF clinic visit yesterday, and a GREAT Thirty-One Party for CF last night!! We have raised $700 so far and are still taking orders until Fri 7/27!! The pic above are just a couple of items available. BIG THANK YOU to Carrie Guenther my consultant, who did a wonderful job and is donating 25%(her commission) to a CURE for CF!! Another BIG THANK YOU to all my awesome girls for coming to my party and ordering something!!...

Stacie M

Margo

Amanda

Samantha S

Barb

Rachel M

Oma

Samantha C

Andrea S

HUGE THANK YOU to my Kohl's girls in red above for coming so that Kohl's will give a grant of $500 that will go towards a CURE for Cystic Fibrosis for Lil' Chris and ALL who suffer from CF!! To break it down, $500(Kohl's grant) + $200(25% commission on $800 ordered)=$700!! Click here if you would like to order too and help us get to $1,000 by Friday 7/27!!!! 

Every girls gotta have a Thirty-One bag;-) I'm super excited to get mine!!! You can even personalize it with a saying like "Cure CF" or your name or something for only $5!! Also, for every $31 you spend, you get one of 5 bags for only $5!! The bags you get for $5 are really nice too!! If you are interested, just let me know!

Thank you to Samantha for bringing Makayla so that Lil' Chris and Ayla had someone to play with:) Also, it was so nice talking with Samantha and sharing my tips and tricks of having an infant with CF. Her 4 month old daughter was recently diagnosed with CF. Please keep Aubrey and the whole family in prayer as they get used to this new way of life. Also, Aubrey has cultured Pseudomonas already and is on Tobi and Cipro which is hard for a little one to sit and do those treatments.

Special thanks to my neighbor Stacy W for ordering on-line even though she couldn't make the party! Thanks Stacy!!

Thank you to Jeanette and Steph W for spreading the word and getting orders!! You girls ROCK!!

So our goal is to hit $1,000 raised by Friday 7/27, so make your orders and spread the word!!

As for Lil' Chris' clinic visit...his weight was 45 lbs(73 percentile) up from 43.8 lbs, height was 45.5 inches(88th percentile) up from 45, and his BMI was 47% up from 40!! WOOHOO!!! I'm so glad he has started eating a little bit more. He will now eat a grilled cheese sandwich, turkey and cheese sandwiches, and nuggets!! Just the other day when I was giving him a bath, for the first time I noticed that his belly is actually starting to stick out a little bit!! WOOHOO!!! Gaining weight is so important to CFers. 

His PFT test went GREAT!! He blew a 99 FEV and a 93 FEV1!! She kept saying what a great job he was doing for his age! I love his face in the video's above after he got done:) He was so impressed with himself, I think:) I know I sure was proud of him!! Way to Go Lil' Chris!!

Overall, the CF doctor told us that we are doing a GREAT job as parents and to keep doing whatever we are doing b/c it's working! She also said that ....

"Lil' Chris is our poster child for CF"

WHAT???? WOW!!! I LOVE hearing that!! I pray he continues to do so well! He wouldn't be doing so well if it wasn't for all your prayers!! I can't thank you all enough for continually praying for Lil' Chris!! It means the world to us!! God CAN work miracles, and he is every day in Lil' Chris!!

I'd say pray for a clear throat culture result, but he didn't get one this time. I'm not too worried about it since he just got one 2 months ago and he hasn't had a cough since!! Praise the Lord!!

The kids behaved so well for the 2 hours that we were there!! When they weren't looking out the window at the baseball field with Daddy, they were playing with the iPad or reading books that we brought from the library:) Love my kids!!

We had another CF Fundraiser today at the Alice Noble Ice Arena! BIG THANK YOU to my awesome Kohl's associates for coming so that Kohl's will give another $500 grant to cure CF!!...

Marla

Steph W

Sarah D

Devin

That's $1200 in just 2 DAYS for a CURE for Cystic Fibrosis!! WOOHOO!! We did a CF craft at the Summer camp at Alice Noble today, which was learning about CF and then putting CF tattoos on. Above is a pic of the kids being goofy with their shirts and shorts. Some of them even put the tattoo on their forehead. LOL! Then there is a pic of Lil' Chris being silly with one of the toys:) LOL

Thanks, 

M

PS. I'll update you on our total from the Thirty-One party after Friday when it closes:)

Thirty-One Party for Cystic Fibrosis 7/25/12 at 7pm

Ok everyone, I'm having my first ever Thirty-One party to benefit the Cystic Fibrosis Foundation to help find a CURE for CF!! Who wants to help me raise some much needed money to find a CURE and also get some pretty cool hand bags for yourself?? ;-)


Everywhere I go, I always see someone carrying a Thirty-One bag! I've been told by many that "You're not cool, unless you have a Thirty-One bag!" So I've teamed up with my awesome neighbor, Carrie G, to host a party at my house this coming Wed 7/25 at 7pm(message me or email me for address if you want to come). I can't wait! This is the first party that I've ever hosted! I think I went a little overboard on buying stuff for the party;p I got all kinds of different chips, cookies, pretzels, and soda:-)  Well...I DO have a CFer in my house, so....Yes, everything is high calorie, sorry :p LOL


Feel free to pass this along to get more orders and to get more money for the CFF!! You can order no matter where you live!! You don't have to be here for the party to order something! Just click this link and make your order and 25% will automatically go towards CF!!  http://www.mythirtyone.com/shop/eventhome.aspx?eventId=E1971734&from=MYEVENTS


BIG THANK YOU to Jeanette for being the first to order and to get her friends to order too!! Thanks Jeanette, you're the BEST!!!


Another BIG THANK YOU to my 2 sisters and my neighbor Andrea for ordering as well!! We are almost at $250 already and we didn't even have the party yet!! That's AWESOME!!! 


Thanks everyone for helping support Cystic Fibrosis!! It really means a lot!!


Before the party this Wed, Lil' Chris has his 3 month check-up at the CF clinic. Please pray that his PFT's are up and that his culture is normal and that his lungs are clear! He has been doing really well and hasn't been coughing hardly at all!! Praise the Lord!! I think the Pulmozyme is doing it's thing;-)


Thanks,
M

Pulmozmye Update, 4th of July Pics/Video's, and Swing Flip

Lil' Chris is doing GREAT with this new nebulizer routine!!  He doesn't mind it at all, and on day 2, he actually asked to do more afterwards;-) I told him it's only one time a day and he got a lil' sad. What a kid! He takes any new thing the dr.'s throw at him SO well!! He AMAZES ME!!

I, on the other hand, am still getting used to it. I'm surprised I haven't forgotten yet since we have been so set in our ways doing the Vest in the morning. It really helps having the nebulizer machine right next to the Vest machine, b/c I've caught myself about to put his Vest on and then I see the nebulizer and I go and get the Pulmozyme out of the fridge real quick;-)

So, I'm still learning a lot thru this whole new process and luckily I have a GREAT CF community to help me out with all my silly lil' questions. CysticLife.org is so great to have around in times like these...

1. We are supposed to wash it afterwards with a clean paper towel and soap and warm water, THEN sterilize them after each use. Oops, didn't do that the first time, we just rinsed them.
2. You can't pour the Pulmozyme in the cup and then let it sit on the counter...it leaks :b Learned that the hard way!
3. Boiling water is HOT!!! I about burned my fingers trying to fish them out of the water after it was in the microwave for 6 minutes and I even let it sit for a couple of min before I tried to get them out!! OUCH!!
4. Lastly, it's hard to tell when the medicine is done. I try to shake it towards the end and then more comes out, but still it's hard to tell and I hate to waste any esp since it's outrageously expensive! Thank the Lord for BCMH!! Please pray we never lose BCMH!

I hope you all had a Happy and Safe 4th of July!! We had a great time at the pool and BBQ at Oma and Opa's house with John, Andrea, and Kennadie!! Afterwards, we went to the soccer fields where we have our CF walk every year, and they had some special things going on, and one was the kids got to sit in some army vehicles and got to turn them on, honk the horn, and step on the gas!! They LOVED it!! They kept asking where their buddy Spencer was and if he drives these :-) I think they are going to have lots of questions for Spencer when he returns home from the army in a month or so;)

Here is a pic of the kids about to watch the Children's Hospital Helicopter, "Air Bear", take off. They liked exploring inside of it, while I secretly prayed they would never have to use it!!

Here is a video of the kids watching the helicopter fly off. It takes a while, but at the end they pray with me that they never have to go in one of these. Too cute...and sad knowing that it's a possibility for Lil' Chris someday:(

After that was fireworks time!! They covered their ears until half way thru, but then they put their hands down and realized it wasn't so bad after all;-)

Well, Lil' Chris continues to do GREAT!!! He is having no side effects from the Pulmozyme and I think he is coughing less too now that I think about it:) YEA!! Right now, he is having fun playing outside on his swing set:) 

On Tuesday, we went looking for a nice new swing set since he loves playing on his tiny old hand me down one, but my goodness they are expensive!! The one we want is white plastic over wood, so then we don't have to worry about splinters, or any mold or rotting or having to stain it each year, but it's like $4,000!!! YIKES!!! Of course it had to have a lil' playhouse which Ayla LOVED, b/c it had windows and a door:) She kept going in it and wanted us to knock to come into "her house"...too cute!! Oh well, maybe some day. On second thought...we might need one sooner rather than later, b/c he just almost flipped the whole swing set by swinging too high, and he just taught himself how to do flips, which is ok, but I'm afraid he might hit his head, and he loves hanging from the top...I guess there's not much else to do with it. LOL I think he needs a twirly tube slide, a rock wall, a rope wall, a horse swing thing, and a much taller, faster slide! He would be in Heaven!...and so would Mommy knowing it's much safer :) lol

Here is a video of Lil' Chris trying to make the best of his swing set(which we are very grateful for, otherwise they would have had nothing all these years, he's just outgrown it now;) and of course him doing a flip!! He was so excited the first time he did it!! I just can't believe he taught himself and he didn't hit his head! Still scares me!

Thanks for checking in with us and please keep your prayers coming!!

M

PS. Remember baby Chaia?? Well she just turned 1 the other day!! Amazing what prayer can do! Thank you all for praying for her, she still needs it as she has a long road ahead of her. Also, please pray for some fellow CF friends...Phennyman and Tricia. Phoenix had surgery the other day and is still in the hospital, and Tricia is going thru so much right now, she has an infection in her sinuses and she continues to loose weight and her breathing difficulties are increasing. Her husband, Nate, keeps a blog about her(which is what got me to start this blog so many years ago;)...www.cfhusband.blogspot.com. Please keep their families in prayer too. Thanks.

1st Nebulizer...Pulmozyme Video

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The above video is of Lil' Chris doing his very first nebulizer treatment!! Not bad for being a 5 year old CFer!! Most CFers start within their first year it seems like! He still doesn't even seem like he needs it, but from what I've gathered, it will only help him in the long run.

His first inhaled med is called Pulmozyme. It's purpose is to thin the mucus. People with Cystic Fibrosis produce very thick, sticky mucus that clogs the lungs and other organs making it harder to breathe. Pulmozyme helps thin the mucus, then the Vest helps clear the mucus out. After his Pulmozyme this morning, we did his vest about 20 minutes after, and I tried to get him to cough after the Vest, but it didn't seem to do much. I guess I was expecting a wet sounding cough that would produce mucus, but it was just dry. Not sure if this is a good sign or not.

I have always been a little scared of nubulizers with Lil' Chris, b/c I know it's very important to keep them sterile. If we don't sterilize them properly, then bad bacterias could build up on it and that would NOT be good for Lil' Chris. We were told to do it right after each use, b/c otherwise the medicine will build up on it and it will be hard to scrub it off. We rinsed it with hot water, then put all the pieces in a bowl and microwaved them for 5 minutes right after his treatment. Then when done, we shook the excess water off and let them air dry on a paper towel. We can not rinse them off with tap water, b/c that would defeat the whole purpose. I've been told that we could use a baby bottle cleaner, so I may have to pick one of those up;-)

This is all a new experience for us, so any insight would be much appreciated!! :)

Lil' Chris is doing GREAT!! He doesn't cough that much, but when he does, it is dry so that is VERY good!! A couple of weeks ago, he was waking up in the morning with lots of build up in his nose, but once he would blow a few times, he was fine. He complained of a sore throat a couple of days, and it got me worried he was getting a cold, but I guess it was just allergies. Thank the Lord!!

Right now, he is living it up having a blast on his Summer vacation, esp the last 4 weeks with his cousins!! Adding the Pulmozyme now will help him get into a routine for when Kindergarten starts this Fall. We decided to start the Pulmozyme this week, b/c I have off work this week and thought it would be good for me to be there with him for the first week so he can get used to it.

On another note...after my vacation this week, I will be going back to work on Mon 7/9 as an Assistant Store Manager of the Wooster Kohl's!!! WOO HOO!! I've finally been promoted AND within the same store!! I can't wait to get started, but this relaxing week with my loves will be so nice:) Thank you so much to all who were praying for this promotion and for me to get to stay at the same location. It really means a lot to me to get to stay so close to Lil' Chris and my family. Family time is so precious to me...to any family with a family member with a terminal illness. I'm just so glad I have the BEST DM EVER to promote me within the same store!! That almost never happens! THANK YOU JASON!!! THANK YOU LORD FOR ANSWERING MY PRAYERS!!

Have a GREAT week, I know me and the kids will...and Daddy when he has off work;-) lol
M

Learning About CF & New Drugs for DDF508 & 2 new local CF families

I got some great news and some not so great news...

The great news is that a Phase 2 clinical trial of Kalydeco in combination with VX-809 showed significant improvements in lung function in people with the most common CF mutation(Delta F508), which Lil' Chris is a double Delta F508!! This is it people!!! This could be our answers to pray!!


If you remember me talking about Kalydeco only working for those with mutations G551D which is only 4% of the population, well VX-809 is what helps the DF508's, so with the combination of them both...the possibilities are hopeful!!! :-)

Here is a video that a fellow CF mom put together to help us all understand what these 2 drugs really do...(note, VX-770 is what Kalydeco used to be called)...



Below is what the CF Foundation posted yesterday about this trial...(click here to learn more)


June 28, 2012
A Phase 2 clinical trial of Kalydeco™ in combination with VX-809 showed significant improvements in lung function in people with the most common CF mutation, according to final results announced today by Vertex Pharmaceuticals Inc.
Both Kalydeco and VX-809, a CF drug in development, are designed to treat the root cause of cystic fibrosis. Vertex developed Kalydeco and VX-809 with significant financial, clinical and scientific support from the Cystic Fibrosis Foundation.
The 56-day study enrolled 109 people, ages 18 and older, with one or two copies of Delta F508. People in the study with two copies of Delta F508 (the most common CF mutation) who received the highest dose of VX-809 combined with Kalydeco showed the greatest improvement in lung function. Vertex released preliminary results from the Phase 2 trial earlier this year.
Based on these final results, Vertex plans to begin a pivotal trial of the combination treatment in people with two copies of Delta F508 in early 2013. Pivotal trials typically aim to gather data that the U.S. Food and Drug Administration (FDA) could use to decide whether to approve a potential drug.
“The improvements seen in lung function are very encouraging, and we are pleased that Vertex plans to move forward quickly with a pivotal trial,” said Robert J. Beall, Ph.D., president and CEO of the CF Foundation. “We still have significant work ahead of us, but the entire CF community can take pride in its role in making this important step possible. We thank the trial volunteers and their families, clinicians and scientists, and our dedicated volunteers and donors across the country.”  
Participants with one copy of the Delta F508 mutation also showed improvements in lung function, compared with those who received a placebo — though smaller than the improvements seen in those with two copies of Delta F508. Vertex said it plans to conduct additional studies of Kalydeco and VX-809 in those with one copy of Delta F508.
About 50 percent of people with CF in the United States have two copies of the Delta F508 mutation; an additional 40 percent of people in the United States have one copy.
The FDA approved Kalydeco in January 2012 for people with the G551D mutation of CF ages 6 and older. About 4 percent of people in the United States have the G551D mutation.
People with CF and their families who have questions about the Phase 2 results can contact Vertex Medical Information at 1-877-634-8789.

Isn't that GREAT news!?!


Now for the not so great news... I recently found out that there are 2 more kids that have gotten diagnosed with CF in our area:'(

One is a cute lil' 9 year old boy. I first found out about him through The Faithful Little Cupcake facebook page. They posted a pic of him doing his Vest while eating one of their yummy cupcakes. So of course I asked if he had CF once I saw the Vest, and of course asked...does he live in Wooster? Then just a coincidence that my friend Stacy A. with Broncheictasis (a lung disease similar to CF) was at a pool party and found out that there was a child there with CF. She of course then talked to his mom and let her know that she could not be near him since she has cultured Pseudomonas. She told his mom about me and surprisingly she already knew about me! She called me "The Famous Michelle who does the CF walk" or something like that :) LOL!! So she requested to be my friend on Facebook and I'm so glad so I can help her out :) Come to find out, she is the same mom from the Faithful Little Cupcake page! Small world:)


The other one is a little girl who was born a couple of months ago. Her sister was in Lil' Chris' preschool. When she was born, they thought there was a mix up with the results b/c the parents aren't CF carriers. The sweat test came back positive though and they are starting treatment today. The parents are going to get re-tested. A girl I used to work with and used to babysit for us, Michelle V., was the one who told me she has CF and recommended I be her friend on facebook. I had no clue who it was until I went to her page on facebook. Since school let out, I've been wondering if she ever got the sweat test done and what the results were. I'm glad Michelle put us together so I can help them out the best that I can.We started Lil' Chris' treatments at just 2 weeks old, so I know what it's like to try to feed an infant with CF and do manual CPT.


I wish these families all the best and I promise I will not let up on finding a CURE!!! I do all this fundraising not just for Lil' Chris, but for ALL current CF families and ALL future CF families!!! WE WILL MAKE CF STAND FOR CURE FOUND!!!


BTW, all my local CF moms who are probably panicking right now...the little boy above is home schooled :) For those who don't know, schooling is so hard for CFers. It was a big decision for us with Lil' Chris. CFers can't be near each other, b/c of cross-contamination, they could spread the bacteria's in their lungs to each other. A nonCFer can't catch it, but to someone who has another lung disease it can be very dangerous. For example, you don't want an older CFer around a younger CFer in fear that the younger one would catch the bad bacterias that the older one has accumulated over the years. 

For Lil' Chris, we had to make a big decision b/c the local public schools had CFers at each one and the one school that didn't...well, it's very old and full of mold which is not good either for a child with a lung disease. So we decided to send him to the local Christian School. Honestly, I'm glad, b/c I've always wanted my kids to go to a Christian school, b/c I loved going to a Christian school as a kid and I don't think I would be the same Christian I am today if I didn't. There are no CFers at this school, but the sister of this newly diagnosed baby girl will be going there. She will be in the all day Kindergarten and Lil' Chris will be in the half day Kindergarten, so next year they will probably be in the same class. We thought we would start him out slow, plus it means one more year of possible less germs to catch, oh and we totally fell in love with this teacher! She knows some friends with CF, so she is aware of how being germs cautious if very important. Anyway, even though they will be in different classes this year, we will still have to be careful that our 2 CFers don't get too close. They say 3 feet is ok, but I've just tried to always keep him far away from any CFer to be safe. So we'll just have to be extra cautious if we go to field trips together or something.


We got back his last throat culture results and it was the same as usual...Staphylococcus areus sensitive to Oxycillen(MSSA). No changes in treatment. YEA for no bad bacterias!!! WOOHOO!! 

Here is a pic of Lil' Chris doing his Vest and holding a pic of his buddy, Spencer, who is serving in the Army right now and was in the Daily Record Newspaper the other day:) GO SPENCER!!

Please continue to pray for good culture results and good lung function and please keep the above new CF families in prayer. They are going to need the strength! Also, don't forget about Phennyman, he is in need of surgery. Lil' Chris' cousin Nathan with Leukemia is visiting from NJ right now and he is doing GREAT!! Praise the Lord!! Thanks so much for all your prayers!
M

Raised $720 at CiCi's Pizza Tonight for CF!! YEA!!

We had another successful fundraiser for Cystic Fibrosis tonight at CiCi's Pizza!! We raised $720 total!! Woo Hoo!!! 

I designed the sign above and got them made at Staples and put them up around town. They didn't turn out too bad, but next time I need to make bigger ones:) I only had one person, my neighbor John, say he saw the sign and that's how he knew to come. It was a pretty busy tonight, but I'm not sure if it was b/c the sings or not. Maybe I'll put them at different intersections next time :)

The above pic is of Lil' Chris and Ayla helping me pick up the last sign at the end of the night. Believe or not, this was at 9pm and it was still light out! I LOVE SUMMER!!!

Congrats to Sean Conway for winning the 2 Indians Tickets!! Have fun at the game and thank you again for your donation for A Cure 4 Lil' Chris and ALL who suffer from Cystic Fibrosis!!


BIG THANK YOU to my AWESOME Kohl's girls for helping out and helping us get the $500 grant from Kohl's. That makes $2,500 now that Kohl's has donated!! Isn't Kohl's the BEST!?!

THANK YOU

Jill P.

Laura T.

Esther H.

Jolleen

Thank you to my AWESOME neighbors John and Kenadie, Lori A. from work, and Oma and Opa for coming out to support us!!


Also, thank you to Aunt Steph, Uncle Greg, Tyler, Nathan, and Lincoln for coming all the way from NJ just for this fundraiser....just kidding, they are in town for a couple of weeks ;-) LOL


A HUGE THANK YOU to ALL who donated!! Every penny is so vital in funding the MUCH needed research for better meds and hopefully a CURE in Lil' Chris' lifetime!!


Thanks,
M
PS. Please continue to keep Lil' Chris in your prayers :)

CiCi's Pizza CF Fundraiser Tonight 5-8p!!

Join us tonight, Wed June 20th, 

at the Wooster CiCi's Pizza between 5-8p for  

A Cure 4 Lil' Chris 

and ALL who suffer from Cystic Fibrosis!! There will be face painting for the kids and 

a raffle of 2 Indians tickets game of your choice!!! 

Hope to see you there!!

3rd Annual Great Strides Walk for CF

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We had an AMAZING day for our Great Strides walk for a CURE for Cystic Fibrosis!! It was wonderful to see all the support from so many people! THANK YOU TO EVERYONE WHO HAS DONATED, RAISED MONEY, SPONSORED THE WALK, DONATED PRIZES FOR THE WALK, OR CAME AND WALKED WITH US!!! IT MEANS THE WORLD TO US!!

This year was our 3rd annual walk and it was Lil' Chris' first time going. In the past, he stayed home with a sitter since there is a risk of cross-contamination between him and the other lil' CFers. This year we decided to let him go since he is getting older now and we promoted the walk and raised money at his preschool. He was soooo excited when his buddy Kyle from his class came!! Lil' Chris and Kyle played under a tent a little bit away from the pavilion. I just couldn't take Lil' Chris and be able to do all I had to do AND worry about him getting too close to the other CF kids, so we bought the tent and my hubby put it up! Thanks Honey!! It was a little tricky trying to go back and forth between the tent and pavilion, but it was worth it! Kept my mind at ease:) We still have not gotten his last throat culture result back yet. I'll have to call Monday.

We were soooo THANKFUL that Panera Bread supplied the yummy bagels! I LOVE Panera!! BIG THANK YOU to Domino's and McDonald's too!! The pizza's and happy meals were a big hit!!! The fruit from Buehler's went pretty quick too:)


David L. was a hit with the AWESOME balloon animals he made for the kids!! Thanks David!! 

There were also CF frisbee's for the kids and CF tattoo's(I accidentally put Lil' Chris' on upside down LOL;). Pat Catan's didn't make it there(I totally forgot to call and confirm with them...oops), but the fire truck did!! They had to leave for about 10 minutes for a call, but fortunately it wasn't anything serious and they were able to come back. Lil' Chris LOVED exploring the big "Fire Red" as he calls it:) LOL

We had a new director this year, although she has been with the chapter for a while, this was her first walk that she ran. She did a GREAT JOB!! She also has a son with CF, so she knows how important these walks are to the CF world. THANK YOU KATHY FOR ALL YOUR HELP!!!

BIG THANK YOU again to Sprint Preferred Wireless for your huge sponsorship and towels for all the walkers!! Loved your big signs! We took our group pic in front of them:)

Thank you Wayne Savings Bank for your Rose Sponsorship!! It was so nice seeing your sign up in the garden of roses:)


Thank you Speedway for donating the ice!! It was nice having cold drinks on such a hot day!!


Thank you to my Kohl's peeps for coming and supporting Lil' Chris and CF!! Kohl's so far has donated $2,000!! Gotta LOVE Kohl's!! :)

Thank You to...

Tiffany M.

Barb N.

Rebecca G.

Steph W. & Family

Amanda P. & Quincy

I can't say THANK YOU enough to all my friends, family, co-workers, neighbors, and even complete strangers for donating to help us find a CURE for Cystic Fibrosis for Lil' Chris and ALL who suffer from CF!!! Our walk raised over $16,000!!! That's AWESOME!!

TOGETHER WE WILL MAKE CF STAND FOR CURE FOUND!!!