ONE WEEK til our CF WALK!!!!

Only ONE WEEK until our 5th Annual Great Strides Walk for a CURE for Cystic Fibrosis!!! I'm so excited!! I can't wait!! If you haven't registered yet or donated, it's not too late!! It's on Sun May 4th, check-in is at 11 and the walk begins at noon at 266 Oldman Rd Wooster. Click this link to sign up under a team that you know(my team is A Cure 4 Lil' Chris;)...http://fightcf.cff.org/site/TR?pg=teamlist&fr_id=2280 Our new walker this year has passed me! They have raised more money than me at this point...that's AWESOME!! WAY TO GO McKenna's Maniac's!!! I'm not done yet though;p LOL

Here is what we are going to have food wise this year:
-Dominos Pizza
-McDonalds Happy Meals
-Panera Bread bagels
-Chips
-Buehler's fruit
-Water
-Soda
-Lemonade
-Cookies for dessert:)

Here is what we are going to have entertainment wise:
-Wooster Fire Truck
-Samaritan Ambulance
-Pat Catan's Craft Table
-Colored Hair Spray(CFers will be identified by having glitter spray in their hair along with purple or another color:)
-Dr. Dave the Science Guy will be making balloon animals:)

Here are just some of the prizes we will be pulling raffle tickets just for coming to the walk and donating:)
-2-Free 12oz cup of Frozen Yogurt at OH-YO's
-6-$5 Gift Card to Donatos
-2-$10 Gift Certificate to The Parlor Restaurant
-$25 Gift Certificate to El Campasino
-3-Free hair cut at Great Clips
-3 month membership certificate at Curves
-4-Free small combo at Arby's
-11-Buffalo Wild Wings scratch cards
-2-Akron Rubber Ducks Tickets
-4-One Large Pizza at Pizza Hut
-Free oil change at Wooster Lube Express
-$25 gift card to Staples
-$20 gift certificate to The First Amendment Public House Restaurant
-4-2 free items at Taco Bell
-Free bread once a week for a year at Panera Bread:)
-200-free small kiddie cup of frozen yogurt at Kate's Diner:)

And of course, you will get a free Great Strides T-shirt for a donation of $100 or more!! :)

We are working on getting a Hot Air Balloon, a DJ, and some more prizes:) It's going to be a lot of fun, so bring the whole family and don't forget to wear your walking shoes and sunscreen! Pray for great weather!

BIG THANK YOU TO ALL THE WOOSER BUSINESSES THAT HAVE SPONSORED US THIS YEAR!!! WE ALL GREATLY APPRECIATE IT!!! :)

BIG THANK YOU TO EVERYONE WHO HAS DONATED SO FAR!!! YOU ARE HELPING US GET CLOSER AND CLOSER TO A CURE!!! WE WILL ALWAYS BE FOREVER GRATEFUL!!
Thanks,
M

Canton Great Strides Commercial 2014

Here is the Canton Great Strides Walk commercial my hubby made!! It'll play on MCTV in Massillion until the walk day!! It's on Sat May 3rd at 9am at McKinley High School if you can make it!!

THANK YOU SO MUCH MCTV FOR PLAYING BOTH OUR WOOSTER AND CANTON COMMERCIALS!!! You're the BEST:)

Please share!! Awareness is KEY to a CURE!!!
Thanks,
M

Make A Wish!!!

I was going to blog about the exciting things we are going to have for our walk and to thank those who have donated and signed up to walk with us so far, but....I HAVE SOME EXCITING NEWS TO SHARE!!!!!!!

Lil' Chris has been approved for his wish to be granted from the Make A Wish Foundation!!!! YEA!!!!!!

We are all soooo excited!!!! I know you are probably wondering where we are going, so with no further ado ......DISNEYLAND in California!!!! WOOHOO!!!!!

It's kinda funny, b/c up until the day the Make A Wish volunteers came out to ask what his wish was, he kept saying he wanted to go on a Disney Cruise. Even right before they walked in, he was still saying Disney Cruise, with Disneyland as his 2nd choice. When they asked him what his wish was though, he said Disneyland. Not sure why, but we are glad he made that big decision all by himself. After the shock of him changing his mind, we realized that he made a great choice, b/c he will have much more fun at Disneyland going on all the rides, since that's his favorite thing in the world to do:) Good Job, Buddy!! We are so proud of you!!

All the details still have to be worked out, but we can't wait!!! Of course I will have lots of pics for you all when we get back:) It's not for a few months though, so this is going to be the longest few months ever! LOL

We are VERY thankful for this opportunity that Lil' Chris' CF dr has approved him to be ok enough to go on this trip, and for the Make A Wish Foundation to send us on this trip!!! We couldn't be more happy!

We are so thankful that his health has been good and he is able to enjoy such a great opportunity. It will truly be something he will remember for the rest of his life no matter how long or short it is. Wow, it's hard to type that, as I'm sure it's hard for you to read that, but it's the reality of Cystic Fibrosis. His health could change at any time. We are so thankful that his school has been so good about trying to keep him as healthy as possible, especially through this rough, long winter. THANK YOU Wooster Christian School staff and parents!!! You guys are the BEST!!! They are even doing "Change for CF" to help raise money for a CURE by bringing in their loose change!! Some school families have already signed up to walk too!! We are hoping to have a big WCS team at our walk again like last year:)

I'd like to try and give back to Make A Wish, so I'm going to try and set up some AiA events through Kohl's to help get them some $500 grants from Kohl's. Also, if you would like to give back, here is the link to our Make A Wish chapter to donate...http://oki.wish.org/

Also, here is the link to sign up to walk with us on May 4th or to donate for a CURE for Cystic Fibrosis...http://fightcf.cff.org/site/TR/GreatStrides/104_Northern_Ohio_Cleveland?px=1442439&pg=personal&fr_id=2280

Thanks so much everyone!! Please pray that Lil' Chris stays healthy these next few months so we can go on our trip to Disneyland!!!

Thanks,
M
PS. I got lots of good prizes yesterday for our walkers...details coming soon:)

2014 Great Strides Commercial for our 5th Annual Wooster Walk

Here it is...our 2014 Great Strides Commercial for our 5th Annual Wooster Walk for a CURE for Cystic Fibrosis!!!! It will play on MCTV in Wooster starting in April until the day of the walk on May 4th. So, be on the lookout;)

BIG THANK YOU TO MY WONDERFUL HUSBAND FOR PUTTING THIS ALL TOGETHER ALL BY HIMSELF THIS YEAR, HE EVEN DID THE VOICE!! THANK YOU, HONEY!!!:)

Featured in the commercial are CFers...Lil' Chris, Harrison, Aden, Aubrey, and Sophia.

Harrison will be new to our walk this year...he's such a cutie:) It looks like we may have another new team this year too...McKenna's Maniacs. I haven't met them yet, but I look forward to meeting them at the walk:)

Our goal for the walk this year is a total of $22,000 raised and so far between all the teams, we are at $4,615. Not bad, but we got a long ways to go. So if you know of any businesses that would like to sponsor our walk, please let me know! We have different levels of sponsorship and we will advertise their business at our walk.

Also, our goal is to have 200 walkers and right now we are at 55, so please make sure you sign up today! It's easy to register, just click the team you want to join and then click "join our team" and answer a few questions and make a password. Quick and easy!! Usually I register most of my team for them, but with the new website this year, I found out that I can't. They have to register themselves, but luckily it's not hard and the best part is...whenever I share my team link, someone could donate towards ANY of my walkers!! That's pretty cool!! We can try to share the love:) Remember, if you raise $100 or more, you will get a free CF shirt at the walk:) All you have to do is ask 10 people to donate $10 or 5 people to donate $20!! Simple:)

Here is the link to all the teams, so all you have to do is click on the team you want to donate to or "Join" to walk or help raise money!! http://fightcf.cff.org/site/TR?pg=entry&fr_id=2280

I'll update more about all the fun things we are going to have at the walk soon:)

BIG THANK YOU TO ALL WHO HAVE DONATED OR SIGNED UP TO WALK SO FAR!!! WE ALL GREATLY APPRECIATE THE SUPPORT!!!!
M
PS. I posted the new commercial at the top of the blog also, and it will stay there in case you ever want to watch it again when you check one of my posts;)

2014 Great Strides Commercial Coming Soon

Check back soon

for our new 2014 Great Strides Commercial for our walk for a CURE for Cystic Fibrosis

coming up on Sunday, May 4th at 11am at Ida Sue School Pavilion!!!!

 

Gonna be LOTS of FUN!!!!! Will update more soon!!

 

Please pray for our committee team as we try hard to make the walk a GREAT day:)

 

Thanks,

M

Thank You!!!!!

Postcards by Vistaprint

My wonderful hubby just ordered this years thank you cards for donations and help with the walk:) I usually don't share them on here, but it's so cute, how could I not;)

If you would like one of these cards, just make a donation on Lil' Chris' Great Strides page or sign up to walk with us for a CURE for Cystic Fibrosis!!! Click this link, it's fast and easy and 100% tax deductible...http://fightcf.cff.org/site/TR/GreatStrides/104_Northern_Ohio_Cleveland?px=1442439&pg=personal&fr_id=2280


Big THANK YOU to Kohl's, Barb N, Paul & Kim, Holly S, Stacy W, and Aunt Mar for your donations!!! We GREATLY APPRECIATE EVERY PENNY!!! The researchers are soooo close to a cure and you guys just helped us get closer...can't thank you enough!!! :)

BIG THANK YOU to Dave and Debbie C, Kevin and Jessie, and Deb W. for signing up to walk with us on Sunday May 4th for a CURE for CF!!! Can't wait!! It's going to be so much fun!!!

Our goal is $5,000 and we are currently at $2,110!! WOOHOO!!! This kids classes at Wooster Christian School are doing "Change for CF" to raise money!! YEA!!! Thanks for the support WCS!!!

Thanks Everyone,
M

Cough Update

Sorry it's been awhile, but I've been busy fundraising and organizing for our upcoming walk for CF on May 4th. This is our 5th annual walk!! I can't believe how time flies! Seems like yesterday I made the call to the CF Foundation to get a walk started here in our town since all the other walks are kinda far:)

I'll update you more on the walk later, but for now I'll fill you in on lil Chris...My last post was when he had that bad cough and we thought he was going to have to get an antibiotic for it...we'll, I'm happy to say that his cough went away on its own and I didn't even need to call the clinic!!! YEA!!!! I was so relieved!! He's has been doing great since!! Thank you all sooooo much for all your prayers!!! God definitely heard our prayers and answered them!!

Well, I gotta get back to fundraising... I'm in the process of writing a letter to the kids classes about joining us for our walk and raising money for A CURE 4 Lil' Chris;)

Keep checking back for some exciting news coming soon:)
M

CF Update-Cold and Cough:(

Last weekend, we all got a cold, and now we all have a cough:( Poor Lil' Chris coughed his head off all day yesterday. A wet/dry cough. We tried everything...Albuterol puffer, Mucinex, Pulmozyme, Vest, Acapella, manual CPT, Vicks Vapor rub on his chest and feet to help him sleep last night(thanks Nancy for the reminder, I totally forgot we had that:). I felt so bad, he just couldn't stop coughing. At one point I started counting in between coughs to see how high I could count...I only got to 17 seconds:(

Luckily, he finally fell asleep last night and was able to sleep through almost the whole night. Of course, he woke up coughing again though, not as often, but still a lot:( I know the CF clinic won't give him an antibiotic unless he's been coughing for a few days to a week to see if it will go away on it's own, b/c they don't want him to become immune to the antibiotics. So, if he's still coughing by Monday, I'm calling to get an antibiotic. Hopefully his cough will be gone or hopefully the clinic will be good and prescribe an antibiotic ;p

Normally when he gets a bad cough they tell us to up his Vest from 2 times a day to 3-4 times a day...kinda hard when he is in school from 9-3:30. I know some parents who take the Vest to school and do treatments there during lunch or something, but I don't know how he would respond to his class mates seeing him do his Vest. So we will just have to do Vest before and right after school and then right before bed. So that's 1 1/2 hours each day, poor kid. Luckily he has been in good spirits. He goes along playing and laughing like he's not even coughing! I don't know how he does it!! I was coughing a lot at work and it gave me a headache and I felt miserable:( Ayla was the first one with a bad cough and she was put on Azithromycin for 5 days.

Please pray that his cough goes away soon and doesn't do any permanent damage to his lungs. Just yesterday the FDA approved expanded use of Kalydeco for 8 more mutations!! None of them are his mutations, but...this means they are getting closer and closer:) WOOHOO!!! We just need to keep his lungs as healthy as possible until they get it approved for him!!! http://www.cff.org/aboutCFFoundation/NewsEvents/2-21-FDA-Approves-Expanded-Use-of-Kalydeco-for-CF.cfm

I also just got some GREAT news from a fellow CF mom which totally made my day!!! So, despite everything that's going on with Lil' Chris' lungs right now, I have so much HOPE for his future:)

Thanks everyone,
M