For Day 2 of CF Awareness month, I wanted to share this awesome news about the great results they are having of the combination of Kalydeco and VX 661! This is for those who have DF508 CF genes, like Lil' Chris. Click the link below to read all about it and other trials they will be starting too!!...
http://www.cff.org/aboutCFFoundation/NewsEvents/2013NewsArchive/4-18-Phase-2-Combo-Study-Kalydeco-VX-661-Results.cfm
Great news!!! We just got another sponsor for our walk this Sunday!!! BIG THANK YOU to Starmark Farm for being our Single Rose Sponsor!! YEA!!! THANK YOU THANK YOU THANK YOU!!!
The walk is this Sunday at 11am behind Ida Sue School!! I can't believe it's time already!! We have everything set and ready to go and have some fun!!! We will be collecting any money you have raised or any donations you would like to give personally. If you raised or donated over $100, you will get a CF t-shirt!! YEA!!!
If you haven't registered yet, click my Great Strides link in the upper right hand corner of my blog and "join my team" or "click to donate" today!! Thanks!!
I found out that the New Philly Kohl's and possibly Medina and a couple others might be at our walk too!! WOOHOO!!! Those $500 grants sure can do a lot to help us find a CURE for CF!!! THANK YOU KOHL'S!!!!
Hope to see you there!
M
PS. Please keep Tricia in your thoughts and prayers. She is an adult CFer who desperately needs a double lung transplant ASAP!! Are you an organ donor? If not, sign up today and you could save up to 14 lives!!
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