Our old CF Commercial that plays on MCTV. Still working on this years.

Tuesday, March 31, 2009

Good & Bad Day




Today was good b/c it was the first time Ayla slept through the whole night!! YEA!!!! I couldn't believe it! She went to bed around 8pm and woke up at 7am! Yup...11 hours!! She cried for a second in the middle of the night, but before I even got to her, she was back asleep! When she did finally wake up at 7am, I asked my husband if he got up with her at all. He said no. I hope she sleeps through the night every night now! Lil' Chris even slept to 11am! I guess my hubby really wore them out last night while I was at work;-)

It was also a bad day, b/c I just got back from the dentist:( I had 7 cavities filled! YUP...7! My mouth is all numb still. It wasn't so bad, but it did take almost 2 hours though. I told my boss at work that I probably got the cavities from all the hard candy I used to suck on all the time during both pregnancies. lol
M

Monday, March 30, 2009

R.I.P. Heather

R.I.P.
Heather Kirschbaum
04/11/89 - 03/28/09

I just saw on Kellee's blog that another CFer passed away. Heather was only 20 years old. It makes all of our hard work last night at our fundraiser all worth it.
WE NEED THAT CURE NOW!!!
Thank you to everyone who donated last night. We are getting closer and closer to a cure. We just need to keep pushing until that cure is found. I don't want to have to post anymore R.I.P. posts for another CFer again!
Click here to donate to find a CURE today!! Please don't wait any longer!!
M

Our Fundraiser Turned Out Great!!

We had a GREAT turnout at our fundraiser tonight at CiCi's Pizza!! We had SO much fun too!! When we first got there, we all put our pics of our kids together on a big poster that Alma brought...Thanks Alma:) I gotta say, this poster was the BEST, I loved it!! Here is a pic of it, you can blow it up by clicking on it...Jack(Alma son)is in all the corners, Daniel is wearing his sisters sunglasses, and of course Lil' Chris wearing his Vest...


Here is a pic of the table we had set up for donations, tips, raffle, candy, info about the walk, and Christi's handmade jewelry to sell. Thanks to Alma's daughter for manning the table;) Thanks Alma for the balloons too:)

Here is a pic of the info cards that Daniel's parents made to put on the tables for people to read about Cystic Fibrosis...Thanks Daniel's mom and dad;) You did a great job on them!!

I am reluctant to show this pic, b/c I still have A LOT of baby fat to lose...but here is a pic of all us CF Moms and even a new CF Mom I met tonight! Daniel's mom, Alma, fat me:(, and Heather... I don't know why I didn't get a pic of the dad's, maybe next time;)

Alma introduced me to Heather who she knows on Facebook. She has 2 children with CF plus 1 or more other children as well. I'm not sure exactly how old they are, but I think that her son, Jack is around 5, and her daughter, Allie is around 2 or 3 years old. They were recently diagnosed I believe. I didn't get the whole story yet, b/c it was busy when she was there and I wanted to concentrate on getting the donations. Once I get all the info I will let you know. So far all I know is that she is great at doing fundraisers for CF. I hope to connect with her on Facebook and learn a lot from her. Hopefully she will become a follower of this blog;)

Here is a pic of Heather's 2 kids with CF, they are soooo cute...
She is doing a Pancake Breakfast to benefit the Cystic Fibrosis Foundation on April 25th at the Central Presbyterian Church in Massillon. It is $5 per person and kids under 2 eat for free. If anyone is interested, please email me at lilcmom@gmail.com.

Thank You to Daniel's dad for taking on all the phone calls that I was going to make to try to get corporate sponsors. I had tons of business cards from when I went from business to business, and he said that he could make all the calls since he was recently laid off from work(this economy stinks, doesn't it?) It's a big relief off of my shoulders with trying to cope with 2 lil' kids now and not getting a lot of sleep at night and still adjusting to getting back to work now. So Thank You so much!!!

We came up with 2 more dates to do more Dough Raisers at CiCi's Pizza...April 19th and May 28th from 5pm-8pm. I hope if you live in town that you will be able to make it=) For these, I'm going to get Kohl's involved so that we will get $500 each time. All I need to do is get 4 other people from work to come and help us buss tables for tips for 3 hours. I suggest getting a Kohl's store near you involved in every fundraiser that you do, and esp your walk. Email me if you have any questions or if you would like me to call the store and get it set up for you. It's an easy extra $500 towards a cure. My goal is to someday get EVERY Kohl's store to walk in a Great Strides Walk every year. I know we don't have that many walks all over yet, but someday we will. Kohl's is in every state except 2 and has over 1,000 locations. Wouldn't it be great to get them all involved in finding a CURE!!!

Thank you to Sherri, Vickie D., Anika, Barb, Roberta, Esther, Loretta, Shaina, and Abby who came to support me from work. I really appreciate all your donations towards finding a cure for Lil' Chris. I was very touched to see such love and support from my Kohl's family;) Thank you Vickie for buying one of Christi's handmade bracelets!!! Thank you Anika and Roberta for buying necklaces!! This money will go towards Lil' Chris' medical fund. BTW, I sold $42.00 worth of Christi's jewelry...Thanks Christi=) I may have some orders for you soon;)

I have to say a big THANKS to Alma, her daughter, her husband Paul, and to Daniel's parents.... You guys were AMAZING tonight!!! Thank you for all your hard work and for all that you did to prepare for it!! (Unfortunately my husband wasn't able to make it. He stayed home with the kiddos. Hopefully next time he will be able to join us.) Thank you Paul for getting the Indians tickets to raffle off. The 3 club seat tickets really brought in a lot of money, I think;) We sold 1 ticket for $2 and 6 tickets for $10. It got a slow start, but once we started talking it up, they really started to sell. It was a GREAT idea, thanks Paul for getting the tickets donated for all of our fundraisers and for the walk and for talking it up at all the table;) With all the donations, tips, and money for the raffle tickets, we made $315.00 towards finding a CURE!!! That is not including the 10% from all the receipts. I hope to find out that total tomorrow.

You all are AWESOME and I think we all made a GREAT TEAM tonight!!! I look forward to our next fundraiser=)
M

Saturday, March 28, 2009

Ayla is 2 Months Old!!

Wow!! Can you believe Ayla is 2 months old?? I can't.
Here is a pic of Ayla's first day in this world, meeting her big brother...


Here is Ayla and Lil' Chris today, watching TV together...


She has been smiling sooooo much lately! She likes trying to laugh and make noises too;) We've started to give her 5 oz of formula at night time, but still 4 oz during the day. She usually sleeps 5-6 hours at night. Not too bad. She loves to kick her lil' legs, which aren't so skinny anymore;) She also loves to stare at us, it's so funny. She likes watching our every move too. It's neat watching her turn her head when we walk away;) She has sadly grown out of some of her newborn outfits:( It's sad to have to pack them away:( But it is a good sign that she is thriving!!

She LOVES her big brother!!! In the pic above, Lil' Chris came over to her, gave her some kisses, and then just put his lil' head on her belly and stayed there and watched TV. Ayla loved it!! She even started to watch TV too! At least, that's what it looked like anyways;)

Well, pray that we have a great turnout at our CiCi's fundraiser Sunday night! I'm kinda nervous about going around talking to all the people and bussing for tips. I've never bussed tables before, but I don't imagine it will be that hard;) Wish us luck!!
M

Friday, March 27, 2009

Fundraising Update

He loves the outdoors;)

I did some more fundraising around town the other day. I went to lots of different businesses and didn't get anything right then and there, but hopefully I will hear back from some of them. A few seemed really interested. I got a lot of phone numbers and business cards, b/c by the time I got done work it was already 4:00pm. Usually the managers are either gone or getting ready to leave by this point. Oh well:( I'll start making some calls if the kids ever take a nap at the same time someday. lol

I did get a call back from our local Cable Company! They said that they would advertise a couple of thousand dollars worth for free!! Isn't that awesome!! They would just be one of our sponsors! Now I just need to come up with a 30 second commercial :0 Does anyone have any ideas or advice on how to do this??? I was thinking of getting pics from my walk last year and putting it in there, or taking video of Lil' Chris doing his Vest and getting pics of all the meds he takes. And then of course talk about the info for our new walk in our town this year. We'll see what happens.
I got the phone number to our local radio station too! I tried calling when I got home from work today, but it was too late. I'll have to remember to call back on Monday.

I saw one of the guys I had talked to on my rounds in my work today. He recognized me right away, I was surprised! He didn't seem interested at all when I talked to him, b/c times are hard for him right now b/c of the economy. He even said to me, "See, the lights are half off and I'm the only one here!" I think it was a real estate company or insurance company or something. I can't remember, I've been to so many places I can't keep track anymore. Anyway, when I saw him today, he said that he was reading the papers that I had left with him! Hopefully that's a good sign and he will donate. He didn't say anything else. If I were him I would definitely donate and get my companies name out there, b/c his business sits in the back of a building way off the street. I've lived here for 5 years now and never knew it was there. It would be smart for him to sponsor us and have his name advertised at the walk and when we put it in the newspaper. I gave him a whole bunch of coupons for Kohl's for the weekend before Easter when I saw him today. He seemed very appreciative, so hopefully he'll find it in his heart to donate to a great cause. BTW, if you want the coupons too, just let me know, all I need is your email address:) It's 20% off if you spend over $100, and 15% if you spend under $100.

I think I will give the Kohl's Friends and Family coupons to EVERY business and person that donates money for a cure, every time we have them. Which is quite a few times throughout the year. My way of saying thanks;)

BTW...I added the Great Strides link to the right of my page, so when you are ready to donate, just click it and it will go directly to our site. Oh yeah, remember when I said I wasn't going to be able to have a link this year b/c it is our first year.....well, Erica(our Great Strides coordinator) told us we could sign up for a walk close by, but change the info on our site. So that is what I did. If you join to walk, it may say Cleveland, but don't worry about that. I can let Erica know who will be walking at Wooster and hopefully she can change it on her end.

I also got a call from my neighbor, Jeff, who has his own photography business! He said he would love to help us raise some money by taking a day and having all the profit go towards our walk! Isn't this great news! He is such a sweetheart. We aren't sure exactly how we are going to do it, but we'll figure something out. We might do it on a day before the walk or do it at the walk. I know a lot of CF families would love to get their picture taken, esp a group pic of all their walkers:) I told him I think it will do really well, b/c I know I take pics all the time...Pictures Last A Lifetime...it may be all that I have someday, hopefully not though, hopefully we will find a cure in Lil' Chris' lifetime!!! See that's why you need to click to donate;)

I can't wait for this Sunday!! It is going to be so much fun! I have had a lot of people tell me they are going to go!! I hope we raise a lot of money! We are raffling off Indians tickets and an Indians t-shirt and some other stuff. I'm sure this will help bring people in. Thank you Alma for getting the Indians tickets=) Thanks to my husband who revised the CiCi's flyer to make it say that we are raffling the Indians tickets. Thanks Honey for all you hard work:) Thank you Alma and Daniel's mom for helping hand out all the flyers! I know our kids are going to benefit from all this fundraising some day;)
If you are in town, make sure you stop by CiCi's Pizza between 5pm-8pm this Sunday;)

I'll try to post Ayla's 2 month pics tomorrow.
M
PS. Thank you Traci Liberto for telling me about the Great Strides widget so I could add my Great Strides link to my Facebook wall! For those of you who want to add it to your Facebook wall, go to your Great Strides page and on the left click on the Great Strides widget. Then you have to just add the profile box(doesn't take long) and then copy and paste the code and that's it! It's really easy to do and it could get you a lot more donations! At least, that's what I'm hoping for;) lol

Wednesday, March 25, 2009

Advice on Fundraising

First of all, I have big news....we got our FIRST donation today!! YEA!!! Thank you Christi and Dustin for your online donation! You guys have such great hearts. You have done soooo much for Lil' Chris. I'm so glad you guys were our FIRST donors!! Which reminds me...I sold $50 worth of the jewelry that Christi made to raise money for Lil' Chris!! YEA!!!! I'm still taking orders if you are interested;) Click here to see pics and prices of the jewelry.


Tonight I was a true CF mom!! I put my "Help Cure Cystic Fibrosis Because I Love My Son" shirt on, and of course my necklace that I bought from Christi, and hit the town to raise money for a CURE for CF!! Thanks to Alma(another local CF mom) and her husband who made copies of the flyers for our fundraiser for this Sunday at CiCi's Pizza from 5pm-8pm(sorry, I had to plug that in;) I went to a whole bunch of stores to give them flyers to put out. Some of them put it on their counters for customers to see or take, and others said that they can only put in their break room for their employees to see.

I wasn't just handing out the CiCi flyers. I figured, if I'm going to do this, I'm gonna do it right! So I talked about doing corporate sponsors first or donating at the store level, then lastly I would tell them about CiCi's and give them some flyers(except for stores already in the food business;). I stumbled on my words the first couple of places I went, but then I got settled into a routine once I realized what people needed to hear to make them donate.

So first I would introduce myself and then tell them I am raising money to find a cure for Cystic Fibrosis for my almost 2 year old son. I then went on to tell them a little history about CF. That CF is a disease of the lungs and digestive system and how CFers produce unusual thick sticky mucus that clogs the lungs and other organs and how their bodies don't absorb nutrients. Then I would go on saying how 50 years ago, children with CF didn't live to see their first day of elementary school, but because of the Cystic Fibrosis Foundation and past CF moms like myself doing this kind of fundraising, my son's life expectancy is 37. My goal is to help find a CURE, or at least help the life expectancy to be 87 by the time Lil' Chris is 37 years old. I found that this key phrase helped a lot!

Then I would go on to tell them all the different options they had to participate in finding that cure. I showed them the sponsorship opportunities form that I had and how if they donated $125, we would advertise their store name or short message on one of the roses that we are going to use to make a "65 Roses Garden"(little rose stakes in the ground). If they donated $300, their logo would be imprinted on all walker maps and bulletins and be displayed at the halfway point of the walk, they would have a banner, and they could promote their company with their own decorations. It goes all the way up to $5,000 to be a Site Sponsor and get everything plus more, including a press release to area newspapers. If they seemed interested, I would give them my name and phone number to contact me. My husband actually typed my info on mailing labels so I could put it on the papers I handed out, so I wouldn't have to hand write it every time. He's so smart=) It had my name, phone #, site to donate on line in honor of Lil' Chris, and of course my blog site:) LOL

If they couldn't do any corporate sponsors, then I would ask if they could donate at the store level or make a team to walk with us, or donate a gift card or merchandise to help raise more money by raffling them off or something. So far, only JC Penny's gave me an Ohio State t-shirt and an Indian's t-shirt to raffle off. YEA!! I was soooo excited, b/c that was the first positive response I had gotten all night. Fashion Bug seemed really interested! They might do the Pin Ups, where they ask customers if they want to donate $1 to find a cure for Cystic Fibrosis and in return they write their name on the pin up and they....well I think the name says it all....they pin it up on the wall to show their support. I'm really hoping I can get more stores to do this.

I went to every store in this little strip...from Elder Beerman to a Chinese Restaurant. I didn't care what kind of store it was, it didn't hurt to ask (and even if it did hurt, my son is well worth it;) I got better responses from the stores that I thought never would be interested! The Chinese Restaurant seemed to really like the idea about advertising their name at the walk. I don't blame them the way the economy is right now, advertising is key right now.

So, my advice...go everywhere, even to the places you think would never in a million years donate...you might just be surprised;) Be prepared with lots of copies of corporate sponsors papers, pin up papers, and flyers for your walk. I even carried a notepad and pen for those who gave me their corporate phone numbers to call or those who said to call back and speak to a manager. Also, for future reference, once I got outside of the store, I would write down the name of the store and what kind of response I got and what papers I gave them. That way I would know who would be calling me and what I had given them, and what the managers name was.

I hope this helps my fellow CF mommy bloggers;) If you have any other great fundraising ideas, I'd love to hear them=)

I'll keep you updated on the responses that I get,
M
PS. Click here to make an online donation.

Sunday, March 22, 2009

R.I.P. Baby Ethan

Today is a very sad day for me. I was just reading one of my fellow CF blogger mommy's blog and saw that their son, baby Ethan has passed away. Click here to read his story. This news really hits home to me. Baby Ethan had Cystic Fibrosis, amongst other problems, and was much younger than Lil' Chris. He was born in August 2008 and passed away on March 13th 2009. Please keep his family in your prayers.

This is the first time for me, that a CFer that I have been following for a long time, has passed away. Even though the life expectancy of a CFer is 37, doesn't mean that every CFer will live to at least 37. It is just the AVERAGE life expectancy. This is why it is sooooo important that we raise as much money as possible to FIND A CURE TODAY!!!!

They are so close to finding a cure and better treatments, it's just not funded like it is other diseases. Everyone knows what Cancer is, but not everyone knows what Cystic Fibrosis is. I had no clue what it was until Lil' Chris was diagnosed with it! That's why it's so important to spread the word and get people to donate to the Cystic Fibrosis Foundation, which is what our Great Strides Walk supports. Please, click here to donate to the CFF to find a CURE now, before it's too late.
Thanks,
M

Saturday, March 21, 2009

Comedian Lewis Black Supports Great Strides!!

Watch Lewis Black’s GREAT STRIDES message

March 20, 2009

Comedian Lewis Black helps kick off GREAT STRIDES with a video message about the Foundation’s largest national fundraising event and a call to sign up. Black, an honorary trustee of the CF Foundation, is a cherished friend who has supported the foundation through his participation in the Ultimate Golf Experience for more than ten years.


I never knew he supported CF! He's now my new favorite comedian=)

This week I am busy preparing for our fundraiser at CiCi's Pizza for next Sunday 3/29 at 5pm-8pm. There is lots to do and I feel like I have no time to do it anymore:( It's a little harder this year trying to get things done when I have a little baby that needs a lot of my attention, but I'll figure out a way to make it work! I can't let it stop me from fundraising for a CURE for Cystic Fibrosis! It's too important to our family.

I finally got our home page set up for our Great Strides Walk: Taking Steps to Cure Cystic Fibrosis! Click here to donate or sign up to walk with us! Please help us find a CURE in my son's lifetime!!!

Thanks,
M

PS. Does anybody have any suggestions for our walkers who have CF to wear on the day of the walk? A long time ago, someone mentioned that all the CFers at their walk wore beaded necklaces. I really like this idea, but I'm not sure if I will have time to make them, or if the male CFers would wear them. Do you have another suggestion? What do you do at your walks? How do you identify who has CF and who doesn't? One more thing...those bloggers who do have CF, how do you feel about this? Would you rather others not know that you have CF on the day of the walk?