Our old CF Commercial that plays on MCTV. Still working on this years.

Tuesday, March 26, 2013

Thank You Al & Nancy!! / Gifts by Nancy

Just wanted to say a BIG THANK YOU to 
Al & Nancy S.
for donating to our GREAT STRIDES walk for a CURE for CYSTIC FIBROSIS for Lil' Chris and ALL who suffer from CF. They have both been HUGE supporters from day 1!! Their love and prayers mean soooo much!!

Nancy is sooo talented, when Lil' Chris was a baby, she made all his bibs and receiving blankets and they were perfect!! They were great for when he did his Vest too, b/c they could fit over top of it and cover most of it so if the shaking made him spit up, it didn't ruin his very expensive Vest.
 Here is a recent one of her burp cloth and famous bibs
She can do all kinds of stuff from personalized bibs to bags to towels!! You name it, she can do it!! She can make shirts with customized CF logos or sayings too! Message her if you have an idea & she will work with you! 
Here is a cute Easter shirt :)

Check out her site on facebook... https://www.facebook.com/GiftsByNancy

Saturday, March 23, 2013

One Cough in 9 Months!!/BEST Culture Result!!

 Some pics of Lil' Chris doing his Pulmozyme and Vest before bed.

I was just looking back on my blog here, and I realized that Lil' Chris has only had ONE cough since he started the Pulmozyme daily!!! Pulmozyme helps thin the mucus. He used to get about 5 coughs a year, and now it has been 9 months and he has only had ONE cough!!! And that's including culturing Pseudomonas 2 times!
He used to always get coughs after a cold, but he hasn't the last few times, including his last cold on 3/7/13!! WooHoo!!

Oh, btw, his last culture came back.....

drum roll please..... 


Thank you all for your prayers!!! Keep them coming, because they are working:)

Tuesday, March 19, 2013

Walk/Commercial Update / Big Thank You's :)

The new commercial for our CF walk is in the mail to Clear Picture!!!! WOOHOO!!!
BIG THANK YOU to MCTV for helping spread the word about Cystic Fibrosis and our Great Strides Walk!!!

Pretty soon it will be playing all over Wooster and possibly Massillon!! They usually play it one month or so before our walk, and our walk is only a month and a half away!! I'm getting very excited!!! I can't wait!! This year is going to be GREAT!!!

We are going to have Domino's Pizza, McDonald's, Panera Bread bagels, fruit, water, soda, Pat Catan's craft table, different emergency vehicles for the kids to explore, and of course Dr. Dave and his wonderful balloon animals:) There will be lots of prizes given out too just for coming and joining our walk and donating:)

If you would like to sign up under our team "A Cure 4 Lil' Chris," just click here or click the Great Strides logo on the right side of this blog and click "Join My Team"!! It's that easy!! You can even make your own team and be a team leader if you want!!

If you don't live around here, but would like to still participate, you can go to cff.org, click the Great Strides link, and then search for a walk in your area!! We have many walks all over and you can even create a team for Lil' Chris and walk for him!! My sister-in-law does this in NJ, and my sister D does this in NC, but this year she is driving out to join our walk!! YEA!!! :)

Also, if you can't walk, but would like to donate, click here. I haven't ordered my thank you cards with Lil' Chris' pic on it yet, but I hope to today;) All who donate will receive one:) I know some who line them up on their fridge year after year and compare how big he has gotten and how many new treatments were added in just one year. Plus...he's a pretty cute kid...who wouldn't want his pic on their fridge;p Hee Hee!!! You can always mail me a check if you don't like using the computer:) Just make it out to Cystic Fibrosis Foundation. Email me for address.

And.... if you can't walk or don't have the money to donate right now, you could always ask your company if they would sponsor our walk(or you as a walker) or donate something for the prize giveaways at the walk! Also, you could send out a quick email to your whole address book and tell them of Lil' Chris' story and ask for donations. You can share my blog or my Great Strides link with them:) I know a few people who have raised a couple hundred dollars for Lil' Chris this way:)

BIG THANK YOU to Sprint Preferred Wireless in Wooster for being our Kick Off Sponsor!!  Thanks so much Kevin W. for contacting them and walking again this year!!:)

Another BIG THANK YOU to Wayne Saving Community Bank in Wooster for sponsoring our walk by being our Single Rose Sponsor!! Thanks so much Jeanette H. for setting that up and for walking this year!!:)

Big Thank You to all who bought something from my Thirty-One and Arbonne CF Fundraisers!! We GREATLY APPRECIATE IT!! I don't have the totals in yet, but when I do, I'll let you know how we did:) BIG THANK YOU to Carrie G. and Stephanie W. for donating their commission from the parties:) You girls ROCK!! If you would like to set a party with them, just let me know and I will get you their contact info:)
If you have any questions, please let me know!!
Thanks everyone,

Monday, March 11, 2013

2013 CF Commercial / Fundraisers close this Thurs

Above is our 2013 commercial for our CF Great Strides Walk for a CURE for Cystic Fibrosis!!! I hope to double the amount of people and double the amount of money raised this year!!! If you haven't signed up to walk yet, click here to sign up under my team "A Cure 4 Lil' Chris," or you can make your own team and be a team leader! Let me know if you have any questions!

Here was last years commercial we made...

This year is our 4th annual walk for CF here in Wooster. I can't believe it's been that long already!! I still can't believe that Lil' Chris will be 6 years old one month after the walk!!! 50+ years ago, kids with CF never made it age 5 or 6...and here we are with a very energetic, happy, healthy little CF boy:) I can't thank those who donate and walk with us enough to show how much it really does mean to our family and all families that suffer from CF. THANK YOU, THANK YOU, THANK YOU!!!! WE ARE SOOOOO CLOSE TO A CURE!!! WE WILL GET THERE WITH YOUR HELP!!

If you can't walk with us, but would like to donate, click here to donate in honor of Lil' Chris:) Thank you sooooo much!!

So everyone knows, my 2 CF fundraisers from last week, Thirty-One party and Arbonne party, will remain open until this Thursday 3/14!! A percentage of every purchase will go towards a CURE for Cystic Fibrosis!! Here are the links...

To purchase some awesome Thirty-One bags, click this link...https://www.mythirtyone.com/shop/catalog.aspx?eventId=E2826354&from=DIRECTLINK

To purchase some awesome all natural hair, skin, make-up, and nutrition products, click this link and respond to the invite, put your name and email in, then click "shop online"...https://www.arbonne.com/cm/a/external/invitation/showInvitation?presentationId=720035&attend=N&language=en&country=US&guestId=4358453#

We are hoping to raise at least $250 from each party + the $500 from Kohl's for each party equals to $1500!! We CAN do it!!


Tuesday, March 5, 2013

CF Fundraiser Tonight and Thurs!!

My Thirty-One CF fundraiser is TONIGHT!! Click below if you would like to order and have 25% go towards Cystic Fibrosis!! This months special is for EVERY $31 spent, you can get any tote for 50% off:)


This Thursday is my Arbonne CF Fundraiser, 6pm at my house! Let me know if you can make it!!

Thank you soooo much to those who have ordered already!! 
PS. Guess who went skiing???  Pics coming soon;)