Thursday, May 27, 2010
Ayla likes making bubbles with her mouth and Lil' Chris like to TRY to pop them without getting bit;-) LOL
Lil' Chris is really starting to get the hang of his scooter now :) He is getting too big too fast;(
Ever since he was a tiny little guy, he has always had a different dance to every song or beat. Well, he still does!! In the montage, he has a different dance to all the different beats on his lil' drum set...maybe he'll be a DJ when he grows up;)
Don't forget....tonight is the BIG CiCi's Pizza Fundraiser from 4pm-8pm!!! I am raffling off 2 FREE INDIAN'S TICKETS!! You get to pick the date that you want to go!!
See some of you tonight;-)
Tuesday, May 25, 2010
Sunday, May 23, 2010
Friday, May 21, 2010
Thursday, May 20, 2010
Here is a video of him taking all 3 enzymes with it...
Tuesday, May 18, 2010
So, I said awhile back that I would write about some great things that were going on in our neighborhood for CF...well, here's the scoop....;)
A very nice neighbor had a little get together to discuss when to have a community garage sale and a block party. She encouraged me to talk about Cystic Fibrosis and our walk that was coming up. So I put a few things together for everyone and told them all about CF. They were all very receptive and understanding. I had been wanting to do this for a while, but never really got the chance or the nerve:) So "Thank You Melissa!" :)
After that lil' meeting, I was able to sign up 17 neighbors for our CF walk!!! That was AMAZING!! I was sooooooo excited to have them at our walk this year!!! It really made my day, even though I barely had time to sit and chat with them since I was running around like a chicken with my head cut off;) I GREATLY appreciate their time to come and walk and for all of their generous donations to help find a CURE for CF!! Special thanks to Andrea...it was her birthday and she STILL came to our CF walk!!! "Thank You Andrea!" :)
Another great thing that came out of that neighborhood meeting was a CF bake sale at our garage sale this coming Saturday!! I think it was Carrie that had the GREAT idea about having each house sell some kind of baked goody, and the proceeds from it would go towards a CURE for CF!! "Thanks Carrie for the great idea!!" :)
Don't I have the BEST neighbor's EVER!?!?!
Thank you guys soooooo much!!!
Special thanks to the neighbors that came our Great Strides Walk for CF:
Andrea & John
Carrie & Gideon
Rachel & Brayden
Melissa, Daron, Jeremiah, Micah, Talia, & Carissa
Also, a special thanks to the awesome neighbors that came to one of my CiCi's Pizza CF fundraisers too:
John, Carrie, & Gideon
Seth, Rachel, & Brayden
"Thanks again guys for everything!!!!"
I can't wait until Saturday!!! Spread the word everyone!! Community Garage sale starts at 9am!
Everything Chris and I make will go towards "a CURE for Lil' Chris" and ALL with CF.
Monday, May 17, 2010
This special person's name is Josh, oh yeah, I can't forget about Moganko;)
Josh is an AWESOME, AMAZING, WONDERFUL, INSPIRING, CARING, FUNNY person who just so happens to have Cystic Fibrosis like Lil' Chris. I first came across his blog from another good CF friend, Ronnie. Thanks Ronnie!!
Josh is passionate about spreading awareness about CF and helping all the lil' CFers to better understand CF and to let them know that they are not alone. To do this, he has a special friend to help him...Moganko!! Moganko is a puppet:) Josh and Moganko do special episodes to cheer up those lil' CFers out there that need a good laugh:) They also teach these lil' CFers about CF and CF care and CF treatments. If you ask me, he and Moganko are "just what the Doctor ordered" ;) lol
Click here to check out his AWESOME blog and to see his best episode yet!! Also, please say a prayer for Josh, he is in the hospital right now and had to miss his CF walk this past weekend;(
Sunday, May 16, 2010
Friday, May 14, 2010
Wednesday, May 12, 2010
Tuesday, May 11, 2010
Sunday, May 9, 2010
Thursday, May 6, 2010
He kept wanting to go really fast as you can see;)
As soon as Daddy got home from playing basketball, Lil' Chris said "Daddy, I ride bike FAST!" Too cute;-)
GREAT JOB LIL' CHRIS!! I'M SO GLAD TO SHARE THAT SPECIAL MOMENT WITH YOU:) I LOVE YOU BUDDY=)
Wednesday, May 5, 2010
Did you know that purple is the color for CF???
I have changed my fb profile pic to the one above just for the month of May. You should do the same to get more CF awareness out there:)
This May, I have 3 fundraisers going on...
- For the WHOLE month of MAY, 10 different CiCi's Pizza in Northeast OH are doing Pin-Ups for Cystic Fibrosis. Donate $1 or more and put your name (or a CFer you know;) on a pin-up and CiCi's will display it on ther walls.
- Wed May 12th at Wooster Applebee's(must have flyer) 5pm-8pm
- Thurs May 27th at Wooster CiCi's Pizza from 4pm-8pm. Raffle will be for 2 FREE Indians tickets;)
I hope you can join us if you are in the area:)
Please help me spread the word too! Tell your friends, your family, and your neighbors:) Post it on Facebook, post it on your blog, email it...every little bit helps:)
Thanks everyone for all your support:)
PS. Lil' Chris' cough still isn't the greatest;( Hopefully this new antibiotic will start working soon. Please pray it doesn't turn into a lung infection.
Monday, May 3, 2010
They still need to see him on June 16th though to do his annual visit, which consists of blood work, chest x-rays, and seeing every doctor. It's usually a very long visit. I have a feeling it's gonna seem extra long this time since Ayla is getting older now and wants to walk around and touch everything;)
They put him on Bactrum this time, b/c it has only been a little over a month since the last time he was on an antibiotic(Augmentin). They don't like to do the same antibiotic so close together, so that is why we have to do Bactrum this time. I think Lil' Chris has only done Bactrum one other time. I could be wrong, b/c I tried to search it on my blog and nothing came up. I might be thinking of when he took Sulfatrim. It came in the same big HUGE bottle. One good thing about Bactrum versus Augmentin, is that it is only 14 days instead of 21 and it doesn't have to be refrigerated:) Lil' Chris took the Bactrum for the first time tonight, and he didn't seem to like the taste but he took the whole 10ml. I didn't think he was going to finish it, but he did thankfully!! Hopefully the taste will grow on him:)
So, Bactrum 2 times a day for the next 14 days at 10ml each time. 10ml seems like a lot!! Pray we get through this with no problems and pray that it works and kicks his cough right out.
I forgot to tell you what he did a while back that just about every kid does I think.......somebody guessed that he cut his own hair, which was a great guess, but what he really did was....tried to climb his dresser and it fell on top of him! Lil' stinker! Luckily he didn't get hurt. He said he wanted to touch the radio on top :) Here are some pics after I picked up the big part of the dresser...
Here is what I found behind his crib...pieces of paper from his books that we used to let him go to bed with. Now you know why we don't let him go to bed with books anymore;-) I wondered where he used to put all the pieces;) lol Ayla throws her socks behind her crib;) lol
Please also pray for Emily's family and friends. Emily was a 26 or 27 year old with CF who passed away on May 1st. She did many wonderful thing for Cystic Fibrosis. She was the ambassador of Pipeline to a Cure. I remember watching her video's a long time ago and they always just stuck with me. She was big on surfing and said that it helped her clear her lungs better and the salty air helped too. She was basically the reason why I wanted to move closer to the Ocean so Lil' Chris could be closer to the salty air. If we could afford it, I would.
At least now she is in a place with no CF. Breathe easy, Emily. You will be missed by so many! Click here to hear more of her story.
Saturday, May 1, 2010
Special Thank You to our entertainment:
Pat Catan's Craft Store
Wooster Fire Department
Our Balloon Maker: David Lohnes
You guys were AWESOME!! The kids had so much fun!! And so did I;-)
Last year our walk raised a total of $7,500, I think. By the end of this year, we will have raised close to $13,00!!! WOOHOO!!! Kohl's alone will have brought in a total of $5,000!!! THANK YOU TO ALL MY WONDERFUL KOHL'S ASSOCIATES THAT HAVE PARTICIPATED IN MY CF FUNDRAISERS AND WALK!!! YOU GIRLS ROCK!!
Thank you to Jack's Pack and Daniel's Friends for all your donations and support:)
Especially thanks to all those who say a special prayer for Lil' Chris each day and for ALL those suffering with Cystic Fibrosis! We greatly appreciate it!
As great as a day as it was, I was still sad every time I got a second to look around, b/c I knew Lil' Chris would have LOVED EVERYTHING!! He's at that age now where he would have LOVED the Fire Trucks, he would have LOVED the craft, and he would have LOVED all the balloon animals. Most of all...he would have LOVED just being there and running around. Maybe someday I will get up the nerve to take him. It's just hard with the possibility of cross-contamination.
PS. If Lil' Chris' cough doesn't get any better by Monday, I'm going to call the CF clinic to get an antibiotic. He is not sounding too good;( Please keep the prayers coming.