All 8 different nurses/dr's that we saw today said to "keep up the good work and that he is doing GREAT!!!" Gotta LOVE hearing that:) They made no changes to any of his meds since he is doing so well. YEA!! They did take a throat culture test, so now it's just the waiting game;( Why must they torture us so long?!?! Please pray it comes back "normal." I'll let you know when I find out.
4. To all my CF buddies...email CF_Panel@wwmr.com to sign up to earn some extra money while helping out the CF community, or you can call 1-888-947-2339 extension 112 for Michelle Nordstrom. So far I have raised $775!!! WooHoo!! You get $50 just for joining and $25 every 6 months!! Please mention you heard about the study from me, Michelle Neher, and I'll get another $50!! Thanks:)
5. Also, there is anther open CF survey right now so call 1-888-798-1889 extension 255 to do a 60 minute CF study and you'll receive $125!! This study is for you or your CF child that is between 6 and 17 and is currently on Tobi. The ladies name is Chris and she said to call even if you don't qualify b/c they may have another CF study for you!
Thanks and I'll let you know if I come across any other legit CF studies or surveys.