Our 2015 CF Commercial that plays on MCTV

Saturday, April 9, 2016

2016 CF Walk May 15th at 11am

As I am preparing for our 7th Annual Cystic Fibrosis walk, I realized that I haven't blogged in awhile. :o

I just wanted to let everyone know that this year our CF walk will be at the same location behind Ida Sue School on Sunday, May 15th. Check-in time is 11am and the walk begins at noon. We hope you can join us! It will be a lot of fun! We will have free food, entertainment for the kids, and more!!

Here is the link to register to walk with us or to donate for a CURE for Cystic Fibrosis in honor of Chris...
http://fightcf.cff.org/site/TR/GreatStrides/104_Northern_Ohio_Cleveland?px=1442439&pg=personal&fr_id=4810

THANK YOU SO MUCH TO THOSE WHO HAVE DONATED SO FAR...
DAD
DANIELLE
AUNT DONNA
DAWN

Big THANKS to Oma for collecting prizes and setting up fundraiser events!! I used to have so much more time and energy to do those kinds of things, but since I got promoted at work, it's been a lot harder. So THANK YOU, OMA for picking up my slack;)

Be on the lookout for our 2016 CF commercial on MCTV soon!! BIG THANK YOU TO MCTV for always running our commercial one month before our walk!

As for an update on Chris, he is doing REALLY well, Praise the Lord!! So when I don't update on this blog....no news is good news;) I pray I never had to update bad news.

This is Chris at his last 3 month checkup. He has to breathe as hard and as long as he can through that machine to see how his lungs are doing. His PFT number wasn't the greatest(85/94), but the doctor wasn't too worried at this time. Praying his results are much better when we go in June.
Here is Chris' new vest! He wanted a purple one, because purple is the color for CF. He said next time he wants to get a pink one for Cancer. Love this kids heart:) He does 30 minutes of his vest EVERY morning before school and EVERY night before bed to help him breathe easier. He is inhaling Pulmozyme in the picture, which he does EVERY evening. These are one of the many reasons we walk and raise money for a CURE for CF!! So that one day CF will stand for Cure Found!! :)
M

1 comment:

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