If you haven't noticed, I have added some more CF blogs on the right side of the page under the title "Our Fav CF Blogs". I came across them from Nate's CF blog roll call that he did. Every now and then, I look at the list of all the people that responded to his roll call post. I still haven't made it through the entire list yet, but every time I look at it, I end up finding another Christian CF mom just like myself! So, I try to get in touch with them and tell them about this blog, so that we can help each other out or just be there for each other and to keep in touch to see how each others kids are doing. Now I check their blogs everyday.
I encourage you to check out their blogs too! They really are nice families that always help me out with all the questions I email them=) One of the families is having their Great Strides Walk tomorrow! I hope everything goes well and it doesn't rain. I'm sure they will have fun even if it does rain:) I pray that Ashley (3 years old)has fun and doesn't catch any germs or bacterias. Have fun tomorrow Ashley! =)
Another CF family just had a scare. Their almost 3 year old daughter, Samantha, almost had to go into the hospital for the first time. I know that would scare me too. But thankfully, her test came back and it was much better than before!
Melissa is almost the same age as Lil' Chris. I was really excited to find her blog, b/c all the other CF mom blogs that I know all have older CF children(2-28 years old). Melissa's mom and I scratch our heads to the fact that Melissa doesn't do the Vest, but she does the nebulizor....and Lil' Chris does the Vest, but has never done the nebulizor. I don't know. We just say the doctors know what they are doing.
These are just the blogs of those with lil' CF children. I also look at some blogs of CF adults. Like Tricia and Nate's blog of course! The ones who got me started on blogging. Thanks Nate and Tricia!
Also, here is a blog of a 46 year old CFer , Richard, with colon cancer as well. I encourage you to check his blog out and leave an encouraging comment. He could really use it, as he is going through a rough time right now. He only posts a couple times a month.
Here is one that you can really learn a lot from. Lauren (late twenties)has a couple different CF blogs. She talks a lot about CF and has many useful tips.
If I find anymore CF blogs, I'll let you know and I will add them to the list so that whenever you check my blog, you can click on their name on the right side of the page to see how they are doing. If you know of any good ones, let me know:)
M
Posts
On Panic and Presence At Such a Time As This
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We got the little man when he was 18 months old. All he'd known was foster
care his whole life.
His mama who loved him first was struggling with drug addi...
4 years ago
3 comments:
Thanks for this blog, I will have to check the other ones out. I started reading some off of Nats blog, but then stopped. I need to get back to doing that. Glad you found us!
Hi M,
I have my ability to comment again. I ended up setting a new password. Daniel is fine. Daniel had a first at clinic last week. He actually wore his mask from the car until we were in the exam room, and put it back on to go back to the car! His appointment went fine. They said his lungs sounded clear. I was surprised because he was breathing heavy and had such a cough. They put him on an antibiotic, increased his albuterol to 4 times a day, and we will find out if he cultured anything on Monday. The cough is getting much better, but he still sounds like he is running around when he is sitting still. I was thinking this morning that one thing I hate about CF is how it has eroded my confidence as a Mom. I always wonder if I am being vigilant enough, or am I worrying too much when he is fine. With my other kids, I feel confident, with Daniel I am constantly second guessing myself. How is Lil Chris? Any great plans for the weekend? Not much here. I am really looking forward to Tuesday! Daniel’s Mom
Thank you!
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