Our old CF Commercial that plays on MCTV. Still working on this years.

Tuesday, February 23, 2010

Great News!!

Great news for the CF community!!!! A new antibiotic has been approved by the FDA!!! Here is the email from Bob Beall explaining it....

Dear Friend,
We have a new antibiotic in the arsenal to help fight the life-threatening infections associated with cystic fibrosis.

Yesterday, the FDA approved an important new inhaled antibiotic called Cayston® (aztreonam for inhalation solution) for the treatment of CF. The drug was made possible by significant support from the Cystic Fibrosis Foundation, including an early $1 million investment to help develop the therapy.

Developed by Gilead Sciences, Inc., Cayston offers a much-needed antibiotic alternative for CF patients who battle recurrent lung infections and develop resistance to existing antibiotics.

Cayston is administered with a new device called Altera that allows patients to take the medicine in less than five minutes, a fraction of the time required for other inhaled antibiotics.

This shortened delivery time reduces the burden on patients, who -- on average -- have a treatment regimen of three to four hours per day.

Cayston will be available by the end of next week. Patients interested in learning more about Cayston should consult their physicians.

The approval of Cayston demonstrates that our drug development model, fueled by donors and volunteers like you, is working and making a real difference in the lives of people with cystic fibrosis.

To help continue our progress in the fight against CF, please consider making a tax-deductible donation to the CF Foundation today.

Thank you for all you do.
Robert J. Beall, Ph.D.
President and CEO
Cystic Fibrosis Foundation

So if you would like to donate, click here and make a donation today to help get more/better drugs approved that will only help Lil' Chris and all CFers!

So, I was a little down in the dumps tonight knowing that I have a fundraiser at CiCi's this Thurs and no one from Kohl's has signed up yet(that means no $500), plus I am turning 29 tomorrow;( I was sad untillllll I looked at my Great Strides page and saw that my fundraisers are showing up now!! YEA!! So Friendly's brought in $113.78 from the receipts plus the $210 from donations and raffle which makes a total of $323.78!!! YEA!!! CiCi's Pizza brought in $42.21 in receipts(more than what I thought) plus $75 from donations and raffle plus $500 from Kohl's which makes a total of $617.21!! YEA!!!

As you can see, donations to my Great Strides page makes me very HAPPY!! :) So if you would like to brighten my birthday, you can just make a donation:) That simple;) I figured out that if every one of my blog followers and all my friends on Facebook all donated just $5.00, then that would raise almost $1,000!!!! Come on...you can do it....it's only $5.00!!!! ;-) Click here to donate!

Thanks in advance for making my last birthday in the twenties a GREAT one!!! ;)
PS. Join us this Thursday from 4pm-8pm at CiCi's Pizza in Wooster and 10% of your receipt will go towards a CURE for Cystic Fibrosis!!!

1 comment:

Oma & Opa said...

Great news about your fundraisers & FANTASTIC news about the medicine!
I love you