If you want to learn more about the new drugs VX770 and VX809, then click on Lungs Behaving Badly to go to another CF moms blog who did a GREAT JOB explaining it! Gemma has a daughter named Sophie who is a couple months older than Lil' Chris and has Cystic Fibrosis and Tracheo-Oesophageal Fistula and Oesophageal Atresia. She is just adorable!! Gemma always leaves me great encouraging comments on this blog, so I just adore her too:)
I hope you check it out....these drugs are the future of CF and they are the reason I do all my fundraising...plus....Gemma has a GREAT blog:)
On a Great Strides Walk update... I got a couple of call backs today and we now have Frito Lays chips and 10 bags of ice from Speedway all donated!! YEA!!!
Here's what the kids like to play with...(remind me again why I bother buying toys???;-) LOL
Have a GREAT day!!
Aaaahhhh! - It was one of the more important affirmations I've had in my ministry. It was 2011 and Shaina and I were going through a Church Planters Assessment to see ...
1 month ago