If you want to learn more about the new drugs VX770 and VX809, then click on Lungs Behaving Badly to go to another CF moms blog who did a GREAT JOB explaining it! Gemma has a daughter named Sophie who is a couple months older than Lil' Chris and has Cystic Fibrosis and Tracheo-Oesophageal Fistula and Oesophageal Atresia. She is just adorable!! Gemma always leaves me great encouraging comments on this blog, so I just adore her too:)I hope you check it out....these drugs are the future of CF and they are the reason I do all my fundraising...plus....Gemma has a GREAT blog:)On a Great Strides Walk update... I got a couple of call backs today and we now have Frito Lays chips and 10 bags of ice from Speedway all donated!! YEA!!! Here's what the kids like to play with...(remind me again why I bother buying toys???;-) LOL
Have a GREAT day!!M
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2 comments:
Awww thank you Michelle! We adore you guys too :) I'm glad you found the post interesting/helpful. It has been the easiest way to explain things to family and friends and if it helps the cf community too that's brilliant!
It's just my understanding of things :)
Loving the bottles, soph has a thing for boxes, I'm sure she would be content with those instead of the toys inside, kids eh!
Great news with your fundraising too, I repeat, you go girl!! :)
Xxx
Hi Chris
My name is Jenna and I came across your site. U are a brave courageous fighter and hero. U are an inspiration. U have been through so much in your young life, and your still smiling, you are a true warrior! I was born with a rare life threatening bone disease.
http://www.miraclechamp.webs.com
I love it when people sign my guestbook or email me.
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