I can't believe my baby girl is 3 years old already!!! She is getting so tall just like her big brother:) Check out the video above of her 3rd birthday...She picked out the song ;)
For her birthday, the 4 of us went to Disney World at the end of January!!! We had sooo much fun!! It was their 2nd time going! More pics to come:) Minnie is her fav:) Things she's doing now...
We started potty training her the first week of January and my goal was to have her ALL potty trained by her birthday 1/29...I'm proud to say she did it, and is 100% potty trained!!!! She didn't even wear any pull-ups in the long car ride to Disney!! She has had only one accident since before her birthday and that happened just the other day. She has been daytime potty trained since March of 2011 when she was 2, but now it is sooooo nice that she is potty trained at night time too!!! I know she could've done it earlier, but I guess my husband and I were just being lazy and didn't feel like changing sheets in the middle of the night yet;-) LOL! In the beginning of potty training, she would call for us at least once in the middle of the night to go potty, but for the past month or so, she has been holding it ALL night like her big brother!!! Sooooo proud of her!!! And I'M soooo happy to not have to get up in the middle of the night anymore;-) LOL We changed her crib into a toddler bed once she turned 3, just like we did with Lil' Chris when he turned 3. She liked it at first, but then when it was bedtime, I think she missed being the baby;) She wanted us to pick her up and put her in just like when it was a crib. She also has not gotten out by herself in the morning either. She will stand up and call for us, just like she used to in the crib. This is kinda good and bad...good b/c she never gets up a million times like her brother does, bad b/c she's trying to act like a baby still, and also bad b/c then WE have to get up and go get her. That was the big reason I wanted to change the bed, so she could get out herself and not call us to go get her since she is usually the first one up around 8am!!! Oh well, she'll learn soon enough I'm sure. For now, I should enjoy it b/c if she's anything like her brother...she'll be driving us nuts soon getting up and down out of bed and not wanting to go to sleep!!! LOL
Her hair is starting to get really long. She HATES it when I try to put ponytails in so it's not so wild and crazy when we go out!! LOL
She is talking A LOT, maybe a little too much!! LOL! Her speech is not as clear as Lil' Chris' was at this age. She has problems with her "R's" and "L's" so we are working on it. Her pediatrician says it's normal at this age and she will get better when she starts school probably. For now we just keep correcting her and it is soooo funny watching her stick her tongue way out for the "L's." :) I can't help but laugh sometimes, it's so cute:)
She can spell her name and pick out the letters, but she can't write them. She's a little stubborn when it comes to writing, but I remember Lil' Chris was too at this age. We'll have to practice lots before she goes to preschool, possibly this Fall. Ever since we got the iPad, she's been learning her letters and numbers more and more. She works that thing better than me!! She goes from one game to the next game, and she can look at pictures and blow them up...I wonder what the future of these kids will look like with learning all this technology at such a young age?!? :)
She is very particular about things being in their right spots. She will usually correct what Lil' Chris does if it is wrong. For example, if he takes his jacket off and just throws it on the floor, she will come and pick it up and put it on the chair where we usually put their coats all the while saying "Chris! It goes over here!!" She's kinda motherly to him in some ways, even when it comes to him doing his Vest or taking his pills. She will remind him if I tell him to do something and he doesn't do it right away:)
She still sucks her pointer finger on her right hand when she sleeps. Not sure how I'm going to stop her from doing this. Her teeth are really starting to stick out b/c of it though, so we'll have to start doing something really soon.
Lastly, she can be VERY stubborn when she wants to(I have the video's to prove it;) LOL!! But overall, she is a pretty darn good kid! She listens very well and if she doesn't, she does what I tell her usually by the time I count to 3, b/c she knows she will get a spanking if she doesn't. She rarely has to sit in time out, but when she does, she sits very well until I make her apologize for usually hurting her big brother and then gives him a kiss and a hug....I make them do that part more for ME than for them, b/c it just too cute;-) LOL
Today I came across Lil' Chris' 3rd birthday video that apparently I never got around to editing and posting, sorry about that;) Better late than never, right??? Sorry it's not edited completely:) Check out the video below...I can't believe how little Ayla was!! Her hair was soooo short and she wasn't even talking!! Lil' Chris looks so different with longer hair too:) He now gets buzzed by Mommy just like Daddy does...his first buzz cut by me was last month;-) I think I like him in shorter hair, it looks cute:) You'll see in the video that he doesn't get a break from treatments on his birthday...his day STARTED with the Vest and ENDED with the Vest with no complaints! He such a good kid:)
Reflux- 1 Prevacid Capsule(15mg)once a day to help enzymes work better
Hill Rom Vest 2 times a day for 30 minutes each
-Frequency 10 Hz for 10 min, then switch to 12 Hz for another 10 min., then switch to 14 Hz for another 10 min. two times a day
-Pressure set at 5 for first 20 min, then 4 for last 10 min.
-Currently at 1,850+ hours total (been using since he was 11 months old) (Got a new machine, so lost count now.)
-Upped his Creon 6000 enzymes from 3 to 5 on 1/1/13 due to stomachaches. Switched to Creon 12000 on 1/29/15. 2 with each meal and snack(7yrs old).
-He started his first nebulizer, Pulmozyme, on July 1, 2012 at 5 yrs old. He uses Albuterol inhaler and the Acapella when he has a bad cough.
-His first TOBI treatment was on 11/5/12, b/c he cultured Pseudomonas for the first time:( Also first time taking Cipro. 5 yrs old.
-Started Claritin for allergies on 5/8/13
He has never had any sinus problems... Praise the Lord!
Last CF Clinic Visit: 12/17/14 Weight: 57 lbs. 5 oz. Height: 52 inches BMI: 30 percentile PFT: 111/110
Next CF Clinic Visit: 5/6/15 at 7:50am
We are VERY blessed as to how well Lil' Chris is doing and has never been hospitalized. Please pray with us that he will continue to do well and stay as healthy as possible.
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Hi! I'm a CF Mom (M) and my son is Lil' Chris. He is 7 years old. He was born with a fatal genetic lung disease called Cystic Fibrosis. This is where I keep a record of EVERYTHING(including lots of pictures and videos:) My sister(D) and I started this blog to not only keep a record of everything and keep family updated, but to interact with other CF families as well. That way we can all help each other out by sharing useful information:) I've learned soooo much already and so can you! Come along for the ride! I try to update whenever I can=)
This is a great spot to start out on our blog so you know our story...Start Here
PS. Lil' Chris has a lil' sister named Ayla(pronounced long A-luh)! She is 6 and does not have CF and isn't even a carrier.
11/12 Pseudomonas 1/13 Pseudomonas 2/20/13 NORMAL!!!! WOOHOO!!! 5/8/13 NORMAL!!! YEA!!! 1/8/14 NORMAL!!! OH YEAH!!! He cultured a couple diff things in 2014, but nothing to worry about.
9/12/09 Start Augmentin for 21 days for a cough from a cold.
3/9/10 Start Augmentin for 21 days for a bad cough from a cold.
5/3/10 Start Bactrim for 14 days for bad cough from a cold.
7/12/10 Start Augmentin for 14 days at 3ml 2x a day from a cold again.
9/15/10 Start Augmentn for 14 days at 3.5 ml 2x a day for a bad cough following a cold.
1/11/11 Augmentin for first ear infection
2/10/11 Started Bactrim for wet cough...no cold.
9/6/11 1st time on Omnicef for bad cough-from cold/allergies
1/30/12 Bactrim for 15 days 12.5 ml - weird cough after Disney
3/30/12 Started Azithromycin 5ml 1st day and then 2.5ml for next 4 days-wet cough after cold/allergies
9/17/12 Amoxicillin for Strep throat
10/24/12 Omnicef capsules once daily for 21 days for wet cough from cold. Also Flonase 2 sprays 2x daily**update**=did not finish either. Cultured PA, so stopped Omnicef to start Cipro and TOBI. Will do Flonase every other day.
11/5/12 Cultured Pseudomonas A, so started Cipro 250mg 2x a day for 21 days AND TOBI for 28 days(first time)
1/16/13 Cultured Pseudomonas again, so started Cipro and TOBI for 28 days again. (no cough)
12/29/13 Bactrim for wet cough, possibly from allergies. 14 days 3tsp 2x a day.
NONE IN 2014 YEA!!!!
Lil' Chris' Cold/Cough List
9/7/09 Runny nose for 2 days, then a cough. 10/21/09 Runny nose, only coughed when doing Vest. Up practically all night the last 2 nights. 12/28/09 Started a really weird sounding cough, no runny nose. Woke up kinda wheezing the next morning and hard to breathe. Cough lasted about 5 days and then went away with no antibiotics thankfully. 2/27/10 Started a runny nose and has had a dry cough for about 2 weeks. 3/2/10 Started wet cough and nose really plugged up and having drainage. 5/3/10 Cold and cough. 7/8/10 Cold after vaca, then turned into bad cough. 9/6/10 Stuffy nose/drainage=cold;( 9/10/10 Cough started, turned into a wet cough on 9/11 2/10/11 Has had a cough for about 2 weeks turned into a wet cough. No cold, but got headaches above right eye. 4/14/11 He caught Ayla's cold after a mini vaca w/o Vitamin D 6/6/11 Woke up with weird sounding cough which turned into a wet cough. 8/2/11 Cold & dry cough after 2 days of VBS and Church 8/5/11 Cold gone, but has wet cough now 9/6/11 Cold/Allergies turned into wet cough. 1/24/12 Weird barking cough turned into wet cough at Disney 3/21/12 Wet cough from cold/allergies-80 degrees in March 10/17/12 Started wet cough from cold. 3/7/13 Cold, no cough 5/8/13 Tiny productive cough, but we think b/c of allergies. was given Claritin and cough stopped, but still stuffy nose in AM. 6/29/13 Tiny productive cough, maybe allergies. Did excessive treatments and it went away without antibiotics:) 8/30/13 Cold, but no bad cough:) 12/20/13 Productive Cough and stuffy nose(got new Vest machine with cough pause option). May be allergies??? Crazy weather lately...60's, then 20's, etc. 12/29/13 We cough continued, so started Bactrim 2014 No major coughs, just few days after colds.
Fever on July 24th 2009-after being on Augmentin for 3 days for a cough. Fever on Sept. 14th 2009-after being on Augmentin for 3 days for a cough. Fever on May 31st 2011-after throwing up off and on, but not from soy protein??? 9/17/12 fever from Strep throat 100.2 2014-2015 Winter: 3 24 hour bugs, fever and throwing up