Our old CF Commercial that plays on MCTV. Still working on this years.

Friday, May 22, 2009

"Angels in Waiting" / Be a CF Advocate

"Angels in Waiting" by Tammy Cochran

This is my new favorite song;) Thank you Phoenix's mom for posting this and for getting Tammy to come to one of your fundraisers for Cystic Fibrosis. I wish we could get her to come to our walk. Maybe someday;-)

I hope that when you watch this video that you really pay attention to the words. They mean SO much to all us CF families. I pray everyday that a cure will be found and that Lil' Chris will live a LONG, FULL, PAIN FREE life!

Tammy's brother Alan lived to 24, and her other brother Shawn lived to only 15. PLEASE, PLEASE, PLEASE DON'T LET THIS HAPPEN TO LIL' CHRIS!!! DONATE TODAY AND HELP SAVE HIS LIFE ALONG WITH 70,000 OTHER CF LIVES!! Click here to donate in honor of Lil' Chris.

You can help in another way too...be a CF advocate!

Cystic Fibrosis Caucus Co-Chairs Representative Edward Markey (D-MA) and Cliff Stearns (R-FL) will soon introduce a bill to help more people with CF participate in clinical trials. Right now, because of eligibility rules regarding compensation for clinical trial participation, many people with CF are forced to choose between taking part in important clinical trials and keeping their health care coverage. Isn't this CRAZY!?!

With nearly 50% of the cystic fibrosis population receiving benefits, this significantly reduces the number of patients able to help test the 30 promising new therapies. The bill to be offered by Congressmen Markey and Stearns will help potential new therapies for cystic fibrosis and other diseases to move swiftly from the research stage into the hands of patients who need them.
Many researches believe that a cure for CF is literally just a year or two away from us now! The ONLY way to find that cure is to have more people with CF participate in clinical trials. We need to help make this easier for them!!

Please click here and become a CF advocate! Once you arrive at the web page, you'll find that the email has already been written for you...you simply need to fill out a bit of personal info so that the email goes to your member of Congress. You can also add a personal story about CF, please feel free to mention Lil' Chris(or any other CFer you know) and the impact that his story has had on your life.

Thank you SOOOOOO much for taking 2 min. out of your day to do this for not only Lil' Chris, but ALL CFers;-)

Please leave me a comment if you participate and let the world know that you are helping make CF stand for Cure Found!!!



Auntie Steph said...

wow...I got all choked up listening to the song...give lil Chris extra hugs for...thanks for sharing this video!

Oma & Opa said...

Tears flowed down my face as I listened to this song and watched the video. I let Dad hear it and cried again. What a great tribute to her brothers. That would be great if you could get her to come to your walk. Have you tried to find out if it would be possible for this year even though it's so close? If not for this year try for next year. I always say it doesn't hurt to ask and you may never know unless you ask. Thank you for sharing this with us. Give my grandbabies lots of hugs & kisses for me.
Love to you all,