Our old CF Commercial that plays on MCTV. Still working on this years.

Thursday, February 5, 2009

Ayla's First Sponge Bath at Home

Thank you all so much for all your wonderful comments on the news that AYLA DOES NOT HAVE CF!! My sister D was right when she said that you all have become like family to me. It touched me to know that this great news brought tears and goose bumps to so many:) Words cannot express my gratitude for all of your prayers. THANK YOU, THANK YOU, THANK YOU=)

PS. Special thanks to my sister D and my husband for posting and keeping everyone updated while I was in the hospital:) You guys did a GREAT JOB!! Feel free to chime in any time guys:)

PSS. Thank you all for all the great advice over the past couple of weeks. I'm still trying to catch up on everything, so sorry if I didn't respond. It was much appreciated though. I never knew that about the saline and about the abnormal chromosome. Even if Ayla might be a carrier, I'll take it!

Click here to read about the interesting comments about the saline for the nebs.

Here is what Susanna said in her comment about the abnormal chromosome(Susanna recently got the same great news that we got about her baby Levi):

Susanna said...
Oh Dear M, That is sooo wonderful! Just like everyone else, I couldn't hold back the tears of thanksgiving that came into my eyes. Thank you God! Just like Charm said, she will be a wonderful special blessing to lil Chris and to all the family. Love and Rejoicing, Susanna

ps...I'm sorry to say that many pediatricians (mine included) don't completely understand the 'normal' test results combined with the 1 abnormal chromosome. They told me the same thing about Levi. You can find out for sure by calling Lil Chris's docs. Each of us have two chromosomes...if both chromosomes carry the CF gene we have the disease CF. If only one chromosome is abnormal with the CF gene we are a carrier. If neither of our chromosomes carry the CF gene we are not even a 'carrier'. A CF blood test will come back 'normal' only if the person does not have the disease CF. 'Normal' test results do not mean Not Carrier. Please, please do not let this info dampen your spirits. Even if Little Ayla really is a carrier, it still means she is completely healthy...just like you and I. She'll never have to take enzymes, or do treatments or suffer from this dreaded disease. It's absolutely incredibly wonderful!! I'm sooo happy for you all!!!


daniel's mom said...

Hi M,
Sara (home sick today) and I were just oohing over Ayla! She is so precious looking! I loved the shot of Chris sitting in his highchair.

Oma & Opa said...

Great pics of Ayla's 1st bath and Lil Chris watching.
There is a song that has been in my mind since the wee hours of the morning that we sing in church and I think it speaks volumes about our Lord God.

"I Stand In Awe Of You"
by Hillsong United

"You are beautiful beyond description
Too marvelous for words
Too wonderful of comprehension
Like nothing ever seen or heard
Who can grasp you infinite wisdom
Who can fathom the depth of your love
You are beautiful beyond description
Majesty enthroned above

And I stand, I stand in awe of you
I stand, I stand in awe of you
Holy God to whom all praise is due
I stand in awe of you."

A few more hours and we'll be there.
Love to all,

Alicia said...

Ayla is so adorable.

My Three Sons said...

She looks squeaky clean. I love pictures of your little one. She is so cute.

Alma said...

YEAH - I haven't had a chance to check recently to get the update! How wonderful about the no CF! You must be elated!