Lil' Chris has been doing much better! Thank you everyone for all your prayers:) His cough is all gone, except he does cough sometimes when he is doing his Vest(that's not a bad thing though;) We are still waiting on his throat culture results.
My next dilemma...
For the last few days or maybe even a week now, his nose has been really stuffy. It isn't runny, just stuffy. He will blow for us, but it never seems to be clear. I'm not sure if it has anything to do with his CF or not. I know CFers are prone to get nose polyps, but I don't think that is what he is getting. Although he does have some bloody boogers once in awhile. Is this the start of getting nose polyps??? What are symptoms of nose polyps?? I've seen a pic of what they look like on someones blog or caringbridge site once(I think it was Aidan's), and I don't see those in Chris' nose. Maybe he just has a stuffy nose or maybe allergies, IDK. I wish it would go away though, b/c he can't breathe through is nose barely at all. His lips are getting so chapped, b/c he has to breathe through his mouth all day and night.
Any CFers or CF moms have any insight on this??
Thanks,
M
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5 comments:
I was exactly the same way until I had sinus surgery to correct a deviated septum. I am still stuffy a lot of the time, but I can breathe through my nose. At least that's what helped me...
I don't think Seamus has sinus problems but he definitely gets stuffy, especially when he first wakes up. The ENT thought it was probably allergy related and we do nasal rinses with him almost every morning. It just loosens things up that are dried out in there. We call them "doing snot rockets" and he loves to show us when he has a "good one".
My daughter has been dealing with the same thing! Stuffy, and then I can also tell she must have some kind of post nasal drip. She's not coughing but she is clearing her throat a lot. I also notice her stuffy nose more when she's sleeping. It's really congested, but she's not sick, and then it will go away for a few days. My first thought was nasal polyps and allergies also. We just had allergy blood work done and we're waiting for those results. So frustrating, right?! It drives me crazy not knowing what it is.
Thanks guys for all your comments, I really appreciate them:)
So I wonder if it is a CF thing then since it isn't just Lil' Chris. I'm going to ask our dr next time we see him.
Thanks everyone,
M
Another thing it could be related to besides the possibility of allergies & CF is the dry heat. I don't remember but did he have this problem in the summer?
Give the kids hugs & kisses for me
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