Our old CF Commercial that plays on MCTV. Still working on this years.

Wednesday, April 29, 2009

Ayla is 3 Months/Lil' Chris' Throat Culture Result


Can you believe it? Ayla is 3 months old ALREADY!! Where does the time go!?! She is getting so big so fast!
She had a dr.'s appt. today...she weighs 12 lbs. and 12 oz. and is 24 inches long! Her weight and height are in the 75th percentile!!! I couldn't believe it!! Lil' Chris' height has been 75, but NEVER his weight! It was a good number to hear. I just pray Lil' Chris will get to the 70's too. It is SO different raising a non-CFer. No enzymes, no spoon and applesauce everywhere she goes, no percussions(pounding on her back, chest, and sides) 2 times a day, no acid reflux, no throwing up all the time, no worrying if she is getting enough food, no vitamins or Prevacid, no worrying about her catching every germ possible(well I do have to worry about her catching germs, but not in the same way as I do with Lil' Chris), no going to Children's Hospital every month, no worrying about hospitalizations, and no worrying if she is going to live past 37. I just never knew how different it would be raising a non-CFer, and how different it would feel. I love them both SOOOO much!!!

Here is a list of things she is doing now:
sleeping throughout the night-YEA!!
making longer noises-so cute:)
loves watching her big brother play
loves giving big huge smiles when she sees us
she is drinking 6-7 oz. 4-5 times a day
she will only sleep on her belly
she loves being put to sleep by patting her butt
she LOVES bathy time:) She never cries when getting a bath
the only time she starts to whine is when she is sleepy or hungry
she loves to kick her little legs-that includes kicking her blanky off ;)
she loves to watch tv
she hates her binky, but loves to suck on her hands
she loves watching her mobile above her crib(she gets a BIG smile on her face:)
she loves pink(ok, maybe that was mommy's doing;-)

Overall, she is doing great!! She was such a good girl at the dr.'s today! She only cried when she got her shots, and even then, it didn't last long. What a good girl! I asked the kids pediatrician if they would do Pin-Ups for Cystic Fibrosis for Lil' Chris and she said "Absolutely!" I was SO excited!! I gave her a pack and I also gave her a bunch of Great Strides flyers in a stand, so she could put them out for other patients to see and take. I also gave her a stack of business cards that my husband had made that say all the info about the walk. It also has my blog address on there, so hopefully I'll get some more readers and get the word out more about CF:)

On another note, we got Lil' Chris' throat culture test results back...he is growing 2 bacterias in his lungs unfortunately. This is the first time he has cultured 2 bacterias! He is growing...Haemophilus influenzae and Staphylococcus areus sensitive to Oxycillin(MSSA). They say he has grown these before, and that there is no changes at this time. I know it's not contagious, but I wish I really knew what these were and what they meant for Lil' Chris. It's not something they treat, but as a mom, I wish they would or could get rid of it. No mom wants their kid growing bacteria in their lungs.

M

PS. Donate today to help find a cure for Lil' Chris and all CFers by clicking on the Great Strides box in the upper right hand corner! Thanks.

4 comments:

Phoenix's Mom said...

I'm so glad to hear Ayla is doing so well, she is so cute! Can't tell big brother is proud, can you? Sorry to hear about the cultures, I know the feeling. When they called to tell us Phoenix had Pseudomonas I cried for a long time. But our guys are strong!
Hugs

CFlover said...

Boo for nasty growing germs!
I am so glad A is doing well!!

Cindy said...

Reilly cultured those 2 routinely, also. The Haemophilus (from what I understand) is your garden variety, standard in the air germs. If I am wrong, someone please correct me! They never treated Reilly for these, and they didn't make her sick. Hopefully it will be the same for Lil Chris.

Ayla is so cute! It sounds wonderful to have such an easygoing baby! Hugs to them both!

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