Our old CF Commercial that plays on MCTV. Still working on this years.

Monday, July 27, 2009

CF Poem & Tips & Tricks Post from Casey

I found ANOTHER new CF blogger buddy through Ronnie and Casey...thanks guys:)
Her name is Alexandria and she is an adult CFer. Click here to check out her blog and show her some bloggy love by leaving her an encouraging comment:)

She had this awesome CF poem on her blog that I thought I would share with you all...

CF is a game...A game in which there are definite winners and definite losers.
The losers scoff at regular treatments, hospitalizations, and medications
They, in turn, receive the assurance of sickness, illness, even death.
Their counterparts, the winners, take their medications, inhalations, and exercise.
These are the participants whose eyes are so fixed on doing what it takes to win and feel good, they don't mind the daily routine.
All because they long to control their CF, instead of letting it control them.
Living to fight,Instead of fighting to live.
This is their mantra.
The game is CF
The goal is to win
The reward is life

I hope you enjoyed it as much as I did:)

Casey had a REALLY good post on his blog today that I wanted to share with you all too. I love learning new tips and tricks:) Thanks Casey!! Click here to read some great advice for not only adult CFers, but for CF moms like myself too;-)

Ronnie also had a great post today too about supplements for CFers and stresses how important it is to do treatments and exercise! Click here to read it!

I gotta be honest...learning tips and tricks to help better my son's life is such a high for me!! =)
PS. There still is time to donate to our Great Strides to help find a CURE for CF!! Click here to donate today! My personal goal is to raise $5,000 by the end of the summer. So far we are almost to $4,000!! Praise God!! Thanks again to all those who have already donated!! We love you:)


casey jones said...

Thanks for re-posting my blog!
I'll have to check out Alexandria's blog, I like that poem!
Keep up the good work, and keep the blogs going!

Oma & Opa said...

I am so glad that Lil Chris is feeling better and eating. You know his daddy was a picky eater when he reached his toddler years. Hmmmm...do you think it is something passed on through the genes?
There's a man in our church who I asked about helping us to raise the money for our Great Strides walks and so he told me to go to his shop and talk to the girls at the desk which I did. I never heard anything back from them so I just figured that no one was interested. Well yesterday at church he told me there was money at the shop for CFF so tomorrow I will go pick it up, check at the beauty salon around the corner and Giovanni's. We are somewhere over the $1900 mark. My goal was for $2000, hopefully we'll make it. I'll let you know what I collect tomorrow.
Give my grandbabies lots of hugs & kisses for me. Here's some for you & Chris--oxoxoxo
Lots of love to you all,

Alexandria said...

Hey thanks for checking out my blog and re-posting the poem ;)