Our old CF Commercial that plays on MCTV. Still working on this years.

Wednesday, January 7, 2009

No Sleep and Susanna Update

Well, I thought I would update before we leave...I have a few minutes since lil' Chris is doing his Vest right now.

I barely got any sleep last night. I guess I'm just nervous and anxious about our Level 2 ultrasound today and lil' Chris' CF clinic appointment. And then when I woke up this morning, I started to get a lot of cramping in the middle of my shower. I thought we were going to have to cancel our appointments today and end up going to our hospital up the road to have our baby girl today! But I laid down for a little and they eventually went away:) So far they have not come back yet.

Hopefully lil' Chris has a good appointment like usual, but you just never know when that corner is going to turn for the worse. His cough is pretty much gone, and his nose hasn't ran in almost a week! But I feel like he should be eating more. I hope his weight is ok.

Please keep us in your prayers today:)

For those who have been following for awhile...here is an update on Susanna's 2 girls with CF, Janna and Chloe. I was so glad to hear from her:)

Dear M,
What a rough night! Aren't these CF kids such troopers though? I'm glad to hear he is doing better.
I know I haven't been in touch for a long time, but I still think of you very, very often. We've had a move, my husband is gearing up for deployment, and of course the holidays are always busy too. I have had very little computer access these past few months, but every time I do, I check up on you guys.
Janna and Chloe seem to be doing ok. Chloe is finishing up augmentin, after a long cold/cough. And Janna is almost 2 weeks into Bactrium because she grew the MRSA bacteria from her last throat culture!!! That really gave me a very hard time at first, because it's so scary and I didn't know what it meant for her, her lungs, for Chloe, for Baby Levi, for those around us... (The short explaination is that they are not as worried about the bacteria as long as they can try to get rid of it, and she doesn't get an Infection with it on board)I really struggled with it at first, and tried to learn and do everything I could, but then I had to put it in God's hands, and He has helped me to rest.
They started both girls on BOOST 1.5 (has 355cal/8ozs) instead of Pediasure (246cal/8oz)! Janna (3yrs, 3mnths) weighed 32 lbs tonight--a record!! I think Chloe(19 months) is around 22-23 lbs. And boy is she turning into a talker! If her words weighed anything, she'd weigh a ton! :-)
Back to you - I can't believe you are soo close to your due date already! That is very exciting. And your baby's name is beautiful.
I must go. Let those who remember us know that we're doing ok:) Email me if you want to. (my husband gets our email on his phone) I'll still check in every time I can. I can't wait to hear all about Little Ayla! Please know that my thoughts and prayers are with your family. Let me know if I can ever do anything for you.



Anonymous said...

Sending lots of prayers and positive thoughts your way! Can't wait to see that new little blessing! Hugs

Alicia said...

Oh, I'm sorry about your night! It's understandable to be anxious about the appts. I pray all goes well.

Tell Susanna that my husband is about to deploy, if she wants to talk to another military wife/mother of CFer.

Zoe Isabella said...

Let us know how it goes today...I will pray that all is terrific! I always get very little sleep the night before important appts. also. The good thing is, the next night I sleep like a rock! :)