Ayla is 6 Weeks Old, D's Visit Pics, & Clinical Trial Video

Wow, where did the time go? My lil' girl is 6 weeks old today! It seems like yesterday I was still pregnant! She is doing GREAT!! Thank God!!

In the past 6 weeks, we found out that she doesn't have CF and she is gaining lots of weight and is learning so much! When we went to the dr.'s yesterday, her weight was 10 lbs. 7.5 oz.!!!! She gained 3 lbs. in 6 weeks!! She is now drinking 4 oz. of formula only, since I have to go back to work on Monday 3/16:( and she still only sleeps 2-4 hours:(

I've noticed a lot of differences between her and her brother when he was her age, I guess b/c of the CF. I never realized what a spit up baby Lil' Chris was until I had Ayla. She doesn't hardly spit up at all!! We could never burp Lil' Chris over our should, b/c of the fear of him spitting up(actually, now I realize it was more like throwing up, lots of carpet scrubbing:(. Lil' Chris couldn't take powder formula, b/c it would make him throw up more. We always had to use the concentrated cans which are very expensive!! Thank God for secondary insurance! Ayla takes the powder formula with no problems. I never realized how much easier powder formula is either! Another funny difference, Lil' Chris used to pee all over us all the time, Ayla hasn't peed once while changing her, since we got home from the hospital that is!! It's kinda funny that Ayla got her first cough and cold way younger than Lil' Chris did, and he's the one with CF! Go figure.

They both have a lot of similarities too though. They both had great neck control early on, both love baths, both look a lot alike, and they both love to smile:) I've noticed sometimes when Ayla spits up, she spits up like Lil' Chris used to at that age...arch back, straighten limbs, spit up comes out of mouth and nose, and then the screeching lil' cry afterwards that just breaks your heart. Maybe all babies do this, IDK.

Here are some pics of Ayla and Lil' Chris today. Lil' Chris did a good job keeping Ayla occupied while I watched Y&R. LOL;) She loves attention from him and he loves giving it to her(although sometimes he can be a lil' rough;)

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As for an update on how they are feeling, Ayla's eye stopped tearing and getting all goopy at about 10pm last night. So the pressing that the dr. did earlier that day really worked! I'm glad I called and took her in before it got worse and turned all red. Lil' Chris is still coughing. He doesn't cough all the time, but when he does, it's pretty nasty sounding. He didn't have such a good day today. I tried giving him a new high calorie drink today, and about 3 hours later, he started throwing up like he used to when he was little. We have connected all the dots and realized that all those times he used to throw up like this was b/c of trying these kinds of new drinks...and guess what they all have in common.....SOY PROTEIN! Yup, he must be allergic! So now we know to definitely stay away from it, b/c he throws up on and off for about 3 hours after drinking it. Right now he is sleeping, b/c he is so exhausted. It drains the life out of him:(

On a happier note, here is a great video of a CF girl who does clinical trials to help find a cure for CF. Is anybody else doing any trial? I was never sure how I felt about letting Lil' Chris do them, but this girl has such a great attitude about it! Plus Carmen, Charmain's daughter, has been a great inspiration too! I just hope Lil' Chris grows up to be as caring for others as these girls are:) Click here for the video. A BIG THANK YOU TO ALL WHO PARTICIPATE IN CLINICAL TRIALS TO HELP FIND A CURE!! If it weren't for people like you, our CFers would no be where they are today!

Here are the pics from when my sister D visited that I promised. My favorite pic is the one where Lil' Chris wanted to wear the clothes that D brought for Ayla. So I tied one around his neck and then I tied the pants to his one leg and then put a headband on him:) He loved it and kept it on the whole time we were going through the bags of clothes! Good thing I have a little girl now to play dress up, huh Honey?!?

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