Our old CF Commercial that plays on MCTV. Still working on this years.

Thursday, April 3, 2008

Let's Learn About CF - Part 4

Tonight we're going to talk about a day in the life of a CF'er.

I'm sure M will expand on this & give you a peek into Lil' Chris' daily routine after she sees this post. We're Instant Messaging each other right now (LOL) but I haven't told her what I'm posting tonight (we're both engrossed in Tricia's sister Megan's blog - she's really funny & we're both enjoying it). I like surprising M with my posts so she has something new to read when she checks in on the blog too.

On a side note for those of you who live far from family, Instant Messaging is a great way to keep in touch when you're online. Our favorite IM client is Trillian & we just use the free version. Check it out at http://www.ceruleanstudios.com/. Okay fav product plug done... back to our Let's Learn series. As always, my source is cff.org.

Because the severity of CF differs widely from person to person, and CF lung infections flare up from time to time, there may not be a “typical” day. However, each day most people with CF:

Take pancreatic enzyme supplement capsules with every meal and most snacks (even babies who are breastfeeding may need to take enzymes). ( Lil Chris has been doing this since he was diagnosed at 2 weeks old)

Take multi-vitamins. (This too)

Do some form of airway clearance at least once and sometimes up to four or more times a day. (Yup & right now he's too young for the vest so M & Big Chris still do his percussions by hand)

Take aerosolized medicines. These are liquid medications that are made into a mist or aerosol and then inhaled through a nebulizer. (Not yet)

As M has said in her previous posts, Lil Chris is also on an antacid to keep him from spitting up. It is related to his CF but she'll have to explain how.

I'm off to bed now - no working from home in my jammies tomorrow. I have to get up & go into the office on Friday's so sleep time is crucial!

Have a great night & keep on praying for Tricia as these next few days are very important & she has a lot of recovery time ahead of her!


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